Hello everyone! New member here—> one with a crippling ALS obsession which began in April 2019 with body wide twitches. Was cleared by a neuro with a clean exam and saying an EMG was not required. Worked on some CBT and felt finally free.
Fast forward to these past couple days, I’m no longer free. Long story short, 40yo otherwise healthy female. The past couple of days I have felt a strange sensation in my throat. It’s almost like swallowing is not coming naturally for me, like my brain forgot how to do it? And of course then I also feel like I’m clearing my throat a lot, I am aspirating food or water more, and I have twitching/spasm/tightness in my throat area? And now my tongue feels “off” when eating food. I am obviously freaking out thinking the worst, cause that’s just what i do best!!! My speech seems fine, as I know Bulbar onset ALS usually starts with slurring, but I have noticed I stumbled a few times on words. Not sure if this is because I am so hyper focused on it all now. Please help! I can’t go down this rabbit hole again... I am a mother of 3 young kids and the thought of leaving them just breaks me. It’s so hard to bare this sometimes. FU HA!!!
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