alzheimers or dementia

[minion]

I kniw I will never be ‘normal’ again😞. I will be worrying about prion disease for the rest of my life

[Frantz003]

I have been the same. I was doing great for about 1 year and my last episode was not that bad like this one of dementia. It has me at my wits end. All I do is cry

[minion]

We have to find a way to push forward and climb out of these situations😞.

[minion]

Really spiralling now!! Latching into everything. Was going through the forum and came upjn a post about white matter lesions on brain. I have these, seen on an mri about 5 years ago. After an ms scare , I was told everything is fine. Now I read that those lesions could be early dementia. I am in a panic!!

[Fishmanpa]

One doesn't "come upon a post". One searches for something relating to their fear, finds and reads it and subsequently spirals You were told everything is fine so.....

Positive thoughts

[minion]

I keep thinking that maybe the neurologist saw that there is evidence of dementia but as they can’t do anything and it could be very early stages and years away, he maybe thought best not to worry me?

[Lana]

Minion,

Firstly, if you are so sure about prion, why don't you see the specialist? Is that possible at all?

Secondly, about 2 years ago, I had a sudden hearing lost in one ear, completely. I had brain MRI, where there were, I am quoting, " scattered white foci....typical for many people due to normal aging process". I am literally quoting the radiologists report. I consulted after that with two more neurosurgeons, and they both confirmed that, adding that is considered, " unremarkable and common findings after certain age". Also, my hearing came back completely, so God knows what that was, but not important. My good friend who is 16 years younger then me, had exact same findings ( they did MRI due to tingling and numbing of her toes). That was about ten years ago, and she is still healthy and happy. No MS, no dementia, nothing...Do not read too much into that, please. White scattered dots are pretty much normal after certain age - some people get them earlier, some later, and some never. I was clearly told that my brain is "unremarkable" what you really always want to hear from any doctor. Also, in the US it is illegal for doctors NOT to tell you, I do not know how it is in your country, but I believe it is pretty much the same in all western countries. I could not recognize your flag, but I believe you you would have been told.

[minion]

Really appreciate the replies guys. My HA really gets the better of me and I spiral.

[Fishmanpa]

Really appreciate the replies guys. My HA really gets the better of me and I spiral.

It's a positive that you recognize it!

Positive thoughts

[minion]

Yes I recognise it but I can’t help spiralling. Every day it’s a different thing and it is exhausting!!