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Thread: SIBO

  1. #11
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    Mar 2010
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    435

    Re: SIBO

    I had 4 - 5 weeks worth in a 12 week period, added to a drug trial that I’m on, which causes gastric issues. This couldn’t have commenced at such troubling times with Covid and not being able to get to see anyone. I’ve had to live 6 months imagining all manner is illnesses, which has really impacted my life, both professionally and personally. The missus had enough and packed her bags on Thurs and has gone to her daughter. My stomach has bloated, I look 6 months pregnant, but I’m loosing weight. I’ve had many Covid symptoms too. I managed to get to see the trial team Drs last week, who are great. They said all the tests I’ve had are reassuring as they have come back negative but no one has looked at my gut. The drug, though out of my system, causes GI issues. I got them for months when starting the trial and it eventually subsided. Jan, I was asked to increase the dose. This has been when the problems have happened. I was told the breathing issues I’ve had, dust feeling in my throat, coughing, a feeling of being unable to swallow and a lump, chest burning, constant belching - I can go on, is probably Silent reflux and I have a gut flora imbalance. My GP was saying Covid, which has given me anxiety as I have underlying health issue. Funny enough, when taking probiotic I felt worse. I think my pancreas has had a hammering from this drug, and I’ve just read the pancreatic enzymes are raised when taking this. I think I have malabsorption as my stools are floating and sticky at times. Not sure if it could be gastritis? I’m waiting to have a camera down so hopefully will get to the bottom of it, but I’ve lost 6 months of my life because of this and developed anxiety.

  2. #12
    Join Date
    Mar 2010
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    435

    Re: SIBO

    I done the candida test too which was positive. Do I have a yeast overgrowth too.

  3. #13
    Join Date
    Apr 2011
    Posts
    96

    Re: SIBO

    My goodness, what you describe does not read to be good.
    I can understand and appreciate your concerns.
    As a very broad generalisation, not wishing to cause any offence at all, try and be wary of joining dots...
    It isn't easy but also be aware of reading too much into what you read. I have never found Google to be my friend in that respect.
    Try and find a health care professional, eg doctor, who you can have faith and trust in.
    This whole Covid situation creates a new base line of a heightened sense of anxiety for us all.
    I can't see that ending anytime soon either.
    Last edited by Dibbler; 26-07-20 at 21:02.

  4. #14
    Join Date
    Mar 2010
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    435

    Re: SIBO

    I was actually advised by a consultant to look up the full side effects of the trial drug as he said everything I described was there. He also mentioned the antibiotics. GP will not accept it. I also get a lot of information from a health shop owner who I know and trust. Agree, Covid is here to stay for the time being until they get a successful vaccine or cure. Also agree that really researching symptoms and illness can cause heighten anxiety and lead into things that may necessary not be the problem. Hopefully I’ll get this sorted very soon, but think things are very slowly calming down.

  5. #15
    Join Date
    Apr 2011
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    96

    Re: SIBO

    I can very much understand needing to be as informed as you can be, regarding that drugs trial. Increasing your dose as you were instructed to do could well have lead to much of what you are still experiencing.
    We are all so different when it comes to side effects from medication. For some reason I do find that I typically react not very well when given medication, needing to take medication each day, and have done for many years, still gives me problems.

    It can be frustrating when you have differing advice from specialists and doctors.
    I remember the two ENT consultants I saw both diagnosing LPR and yet both the Gastro specialists very much disagreed with them..! Apparently that is quite typical for those suffering with LPR. Much of the diagnosis and treatment still centres around traditional reflux and not that of non acidic reflux, which could include pepsin etc etc.
    Sometimes you have to become the "expert" in trying to push for answers and tests etc. But that can often lead to heightened levels of anxiety and symptoms. Not sure what is best there.
    Also the impact of dealing with your physical and mental wellbeing can have a severe impact on those around you, that is very hard to deal with. If things become chronic and long lasting it can be very debilitating, difficult for those who do not experience that to understand or be supportive.
    I have spent, mainly in the past but not exclusively, a lot of money on health supplements. Especially to try and help with LPR and gastro issues.
    When you add anxiety and conditions like IBS etc into the equations I sometimes get the impression that those are what doctors only see as their response.

    One of the better courses that I did was a twelve week CBT mindfulness based one, that did help somewhat.
    Last edited by Dibbler; 27-07-20 at 08:29.

  6. #16
    Join Date
    Mar 2010
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    435

    Re: SIBO

    Yes, it’s frustrating when Dr opinions differ. A problem I have is that my partner cannot get her head around why I’m panicking and not myself. She said to my cardio that I was suffering extreme anxiety and depressed, which he has mentioned in a letter to my GP and now I’m not being taken seriously. I’m not depressed but anxious as I’ve not been well for 6 months now, and I have not been able to get the support needed from GP. Even now they are not seeing people yet I’ve seen a dentist!

    As someone that has been diagnosed with LPR, did you have bloating and a strange sensation in your throat with a very light sour type flavour in the mouth?

    I do think things are slowly improving. The drug trial team have said my issue is not the drug as it would be out of my system. I agree that it’s probably left, but that doesn’t account for any potential issues that it has caused which are slowly rectifying. I will discontinue the trial now once this has been resolved.

    Where did you do the mindfulness CBT, I would like to look at that?

    I use to have Reiki which I found to be beneficial. I’ve have contacted him again to see if I can get get some sessions.

  7. #17
    Join Date
    Apr 2011
    Posts
    96

    Re: SIBO

    I can understand and relate with that. It is very difficult to be taken seriously if you have some "labels" attached to your notes. I had to have a pretty strong conversation with my GP / Specialist that even tho there is a IBS diagnosis on my notes that people with IBS still have their baseline and if things are persistent beyond that baseline then they too need investigation. Fortunately I was able to get a colonoscopy in April (lockdown) and had a surgical procedure whilst that was being done.

    With my LPR (many many tests done) my ENT specialist was very supportive, noting damage to the pharynx and vocal cords. Yes those sensations you describe were noted. Remember also that PPI's and typical ant-acids can't help for non acidic reflux. Pepsin can be aerosol in its delivery to those areas, including your ears and sinuses. Bile reflux also will not be helped by PPI's etc.

    I simply do not have the faith or confidence to believe that just because a certain drug is out of your system then that is the end of your symptoms. I was surprised to read that a drug that I take daily is considered to be ototoxic, tinnitus that I typically relate to LPR.
    From the months of using antibiotics I do feel that they have really messed up my digestion long term.
    SIBO testing and diagnosis, including treatment, is laced with problems and ambiguity. Then again so is that of LPR.
    For LPR I was fortunate in selecting a specialist who had a clinical interest in that.

    You will be very lucky to get a referral for a mindfulness based CBT course. I got mine through my doctor and "Healthy Minds". We used to have group follow up sessions, until the government and local authorities cancelled them due to cut backs. They might be still available in your area..? You would need to chat with your GP. For me they were so much better than the typical CBT based counselling.

    Support and understanding from those "on the outside of your symptoms and feelings" is most difficult. I wish you well with that

    Do you take daily tablets, if so what..?
    Last edited by Dibbler; 27-07-20 at 17:26.

  8. #18
    Join Date
    Mar 2010
    Posts
    435

    Re: SIBO

    You have described the effect on the throat so accurately - “aerosol in delivery”. I was portraying the sensation like a dust. I found today that coffee causes it too, though it is not so severe now. Back in March, the burning in the throat, mouth, eyes and warm burning air whilst breathing out through my nose, was excruciating.

    I also suffer regularly with full and ringing ears which commenced when this all started.

    The meds’ that I take follow.
    Omeprazole
    Bisoprolol
    atorvastati
    Ramipril
    Aspirin

    Solgar Vitamin D 4000iu
    Viridian Co-Q10 with MCT 100mg
    Solgar Fish oil concentrate - 1000mg

    The drug on trial is Semaglutide.

    i think as it currently stands, my relationship is over. She will not come home until I get help. She’s turning this around that I have mental issues going on. I’ve been feeling ill for 6 months with no support from the medical fraternity. My stomach looks like I’m 6 months pregnant, I’ve had problems breathing, loss of appetite, nausea, hoarseness, constant cough, chest pains. Many of the symptoms can be attributed to COVID and that’s what I was told I probably had. No wonder I’m anxious and not myself!

  9. #19
    Join Date
    Apr 2011
    Posts
    96

    Re: SIBO

    For many who are diagnosed with LPR, rather than "std" reflux often medication like PPI's are largely ineffective. As you know they inhibit the production of acid. It often isn't about too much acid being produced but it not staying where it is needed. Many ENT's, and others, are also aware that it can be non acidic types of reflux which can damage the larynx, sinus cavities, eustachian tubes in the ears, airways and lungs etc etc. The aerosol type gases secrete pepsin within these areas, a digestive enzyme that only should be in the stomach, that remains within those tissues for a long time. It can then be reactivated and start to damage those sensitive areas.
    I know that my last ENT was very much supportive of that but both the Gastros I saw were quite dismissive. It seems that LPR is very divisive when it comes to professional people diagnosing and treating it. Typically, in my experience, ENT's support it and yet Gastros remain most sceptical about their findings.
    There is a peptest which can be done with your saliva, a Professor Alyn Morice uses that as a diagnostic aid. He has found pepsin in peoples lungs, breathing and cough etc, and other areas as I have noted and that is pretty hard to dispute as that enzyme should only be in your stomach.
    A person that I know has seen him and there are, iirc, a couple of videos which show him talking about this.
    The tinnitus can be a big problem for me, other times it is "just" in the background.

    Noting that medication you are taking I can only imagine that their potential for side effects are not good. I can't remember if I had read it or it was one of the consultants I saw who mentioned to me that side effects can be cumulative when combined with other medications or over time when used daily. It is most important that we keep taking our medications as prescribed and need to talk to our doctor / specialist about any changes.

    Sorry to read about your relationship, wishing you the best there.

  10. #20
    Join Date
    Mar 2010
    Posts
    435

    Re: SIBO

    The symptoms mirror what I have and currently experiencing now. Really interesting to hear that it can cause sinus issues as that’s what I had in March and it was bad. The GP said assume Covid - must add I had other issues too, mainly throat related, extreme mucus excess, keep having to clear my throat, hoarseness, cough, breathing issues, burning, chest & back discomfort, cramping, pain, stomach noises, foul smelling gas and very gassy swollen stomach. I’m convinced it was the Semaglutide - look it up, differing reviews and a lot of GI issues. Added with the many antibiotic courses.

    Over the past few days my stomach is becoming less swollen. I applied some pressure to the centre stomach region, just above the tummy button and I immediately felt the throat sensation - pepsin. Is there anything that I can take or do to stop this?

    I have some concerns that my pancreas has been affected. I keep getting floating stools that mark the pan. I know there are bloods that measure the pancreatic enzymes but read the semaglutide raise it, so not sure if that would be a good indicator. I will ask the trial team today, but they are not attributing my issues to the drug. The annoying thing is with Covid taking over the health service, I have been unable to monitored as the team usually would have done.

    I spoke with a nephrologist recently who said he thought my problems were drug related. This was before he knew I was on Semaglutide. Omeprazole and Atorvastatin can play havoc with the gut.

    It’s a relief to speak with someone that can relate to the symptoms that I’m experiencing.

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