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Thread: SIBO

  1. #21
    Join Date
    Apr 2011
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    96

    Re: SIBO

    Apart from the pretty constant sore throat, as well as other throat sensations including hoarseness, my sinuses and ears were not good at all.
    I had not, at that stage, related my throat clearing, mucous build up and Post Nasal Drip to all be part of typical LPR symptoms. I was fairly ignorant of how LPR can present and the symptoms that go with it.
    I now understand why it is termed a multifactorial condition and whilst it can be typically diagnosed by an ENT it's management can be most difficult.
    Traditional reflux treatments can be somewhat inadequate.
    I did read about a couple of drugs trials which didn't work out that well to try and limit the refluxing of Pepsin. It doesn't have to be in a liquid form but a gas or aerosol burped up into your airways.
    As well as LPR impacting in my sinuses, and ears, there were noted structural issues with my maxillary, frontal and ethmoid sinuses which required two FESS operations to correct.
    Diet and lifestyle including anxiety and stress plays, imo and from what I have read, a very big part in the management of LPR.
    I have used with some success high alkaline water, above 9 in the scale. That helps to deactivate and destroy the Pepsin that it would comet into contact with. Of course as pepsin continues to be deposited then that process is ongoing.
    I also irrigated several times a day using a more alkaline mix. Sometimes I would also use a facial steam machine with alkaline water to breathe that into my airways.
    But, for me, the irritating cough was fairly minimal, others are more impacted with their airways and lungs.
    High alkaline water can be bought, made with a filter type jug or, less ideal, made by using sodium Bicarbonate in water. The latter isn't much use for people with high BP as it contains lots of salt.
    The other symptoms that you note, digestive disturbances and gases etc... Remember that LPR is multifactorial and presents with a wide range of symptoms.
    I knew one person who has LPR and she told me that her specialist related it to IBS of the upper digestive tract to what the more typical IBS is of the lower digestive tract.

  2. #22
    Join Date
    Mar 2010
    Posts
    435

    Re: SIBO

    I can relate to so much of what you mention. I’m not sure and I really do not want to tempt fate, but I feel as if things are slowly improving as time goes on. I hardly had the aerosol sensation yesterday though my stomach was growling after I ate. When this all started the symptoms I experienced were all attributed by the Dr to a respiratory infection and to assume Covid. Some Covid suffers even describe a dust sensation in the throat. Now I realise mine systems stemmed from the stomach - for sure pepsin. All was probably caused by the Semaglutide injections. I read that they should be given at least two inches from the tummy button. I inject just to the bc side! Whatever ailments this drug caused is, I believe, slowly starting to settle. If you read some of the reviews of people that have a bad time with it, it’s all GI issues.

    I think the copious amounts of antibiotics never helped either.

    One concern that I have is my stools are still floating at times and I feel if I am loosing some weight. I know this can be pancreatic or the the stools contain too much gas, which could be the case. I think this is can also a symptom of SIBO.

    Not that I want it, but I have chased up the referral for the endoscopy as my concern is this second wave of Covid is coming and all the services will shut again.

  3. #23
    Join Date
    Apr 2011
    Posts
    96

    Re: SIBO

    As you have noted I can't see how Covid is not going to be with us for a long time.
    Sadly I also don't see how the NHS, including our GP's, are going to be able to deal with the backlogs of people not being treated due to this crisis, or the already growing waiting lists reduced for people to get diagnostic tests done.
    It is difficult enough to see your GP and I absolutely do not like a video consultation.

    It makes me wonder how many people are aware of the potential long term issues associated with antibiotic use. Of course it is a balancing act of what they are needed for against that of the risk that they present.
    I needed to be on one particular course for quite a long time before I could get my second FESS surgery.
    Last edited by Dibbler; 30-07-20 at 20:38.

  4. #24
    Join Date
    Mar 2010
    Posts
    435

    Re: SIBO

    Totally agree re the GPs. I am one that is anti the phone and video consultation. I had one zoom call and the Dr sat there yawning and looking, I assume at his screen. He made eye contact once. It amazes me that I can get a dental appointment cannot get to see a GP unless I present with something of concern.

    I was told there is a 3.500 backlog for 2 week endoscopes and 15000 and a similar number for echo scans. I do hope that my suspicions prove to be incorrect, but I believe we will be hit with a second wave by the end of next month, beginning of Sept. not that I relish it, but I am desperate to get this endoscopy concluded prior to services shutting down again.

    I

  5. #25
    Join Date
    Apr 2011
    Posts
    96

    Re: SIBO

    I have had a couple of video consults with a specialist using Zoom and then another using MS Teams, similar arrangement. I simply do not like it at all. Trying to get a face to face doctors appointments is most difficult (perhaps not quite impossible) but to feel the need to discuss your issues with a receptionist to try and get a video consult with a GP is most uncomfortable. We can't yet book appointments with our doctors practice. Trying to have continuity with seeing one doctor is impossible, it was difficult before Covid. So we get bounced around with either stand in doctors or different ones each time.
    It is not a good arrangement.
    Yes for some reason getting a dental appointment with our regular dentist has proven to be much easier to arrange, not sure what is going on there...!!!

  6. #26
    Join Date
    Mar 2010
    Posts
    435

    Re: SIBO

    I had an appointment with a top gastro on Monday evening. He diagnosed pretty quickly SIBO and said this would cause all the symptoms that I have had, even down to muscle aches, joint stiffness and anxiety. The bacteria really messes with the brain chemicals. He order two faecal tests to rule out inflammation and blood. Told me to start a course of Symprove for 3 months. If I do not feel any improvement after 2 weeks, we will prescribe a specific antibiotic to destroy the bacteria. Also advised that I look at FODMAP. No requirement for an endoscope.

    Thank you for your advice as you were absolutely spot on!

    I said to the gastro that I cannot understand that 4 Drs have dismissed me when I’ve questioned whether the cause could be gut bacteria overgrowth especially after all the antibiotics that I have taken.

  7. #27
    Join Date
    Apr 2011
    Posts
    96

    Re: SIBO

    That's a good result for you.
    Hopefully you will respond to his suggestions.
    Both the Gastroenterologists that I saw were pretty dismissive about a SIBO diagnosis. The last one pointed out the potential for more harm than good to come from the antibiotics they could use. C-Diff was one of the risks of using them, as explained to me.

    I do find it most difficult and annoying when you can't seem to get an agreed opinion.!

    FODMAP seems to have a lot of merit in these circumstances, good luck with that. I imagine that it will mean some changes for you.

    Take care and you're welcome if anything that I've mentioned has helped.

  8. #28
    Join Date
    Mar 2010
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    435

    Re: SIBO

    I keep everything crossed but feel positive. It was a real relief that nothing I said phased him and that he could relate everything to the bacteria overgrowth.

    The FODMAP list is interesting as a lot of the foods listed under the avoid group, I regularly eat.

    Your advice and experience has been priceless. You were the first to understand and correctly rephrase the throat sensation as “aerosol effect” I had never heard of Pepsin until you mentioned it, but you were right. Thanks again.

    I think there are many on here that woukd benefit from taking Symprove, as opposed to accepting an IBS diagnosis Really goes back to the original posters post. It would seem SIBO, gut overgrowth of yeast, is common, problematic, but rarely diagnosed.

  9. #29
    Join Date
    Apr 2011
    Posts
    96

    Re: SIBO

    I remember once reading an article which suggested that 80%of those who experience IBS also had a type of SIBO.
    From what I understand it can either be methane or hydrogen dominant, leading to either constipation or diarrhoea.
    There is the FTD diet which looks at the fermentation potential of foods. That also had great success with those who suffer with SIBO.
    I bought the book and App for that one.
    Some foods are prone, for some, to encourage an overgrowth of harmful bacteria in our small intestines.
    When you start to look at what you regularly eat you then appreciate how typical that is for many people.
    As mentioned LPR can be multifactorial and the author of that book I noted believes that many who suffer from reflux is due to gases being produced pushing it through the lower and upper sphincters. Hence the FTD diet.

    Best wishes.

  10. #30
    Join Date
    Mar 2010
    Posts
    435

    Re: SIBO

    Hi Dibbler, hope you are well.

    When I saw the Gastro who requested two tests. I received one of the results, which was checking for blood, but the other was pending. Chased up today as still not heard anything and informed no news is good but the PA would check. The Gastro is on holiday. Received a call back advising the result was positive and I may have to have an colonoscopy. The test - faecal Calprotectin checks for inflammation in the intestines. My result was 128, should be below 50. Adds another dimension to things! The PA, who is excellent said it could be due to bacteria. If it were tumour related, the other test which was negative, would have been positive. I will keep you posted!

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