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Thread: How do you learn to live with a “shotty” node?

  1. #1
    Join Date
    Nov 2018

    How do you learn to live with a “shotty” node?

    I’ve heard a few people mention they have shotty nodes that no longer seem to give them any trouble or panic HA-wise. I would be curious to hear your stories of how you got past it—was it through a test, several tests, a doctor’s reassurance, the passing of time...? I cannot get over this one on my neck—it’s been an on and off obsession for me since July (and before that I somehow made it 5 years without prodding around.) I can’t stand that I can feel it, that it’s 1.7 cm and that I can see it poking through if I crane my head ultra far to my shoulder. HA keeps telling me I need to go get this checked again because it just can’t be normal. It’s that feeling of feeling like you’ve cried wolf too many times and ow “this is real” and no one will take you seriously and you will end up neglecting what you should have advocated further for (which is the crappiest of HA feelings, isn’t it?)

    What strategies have you learned to not panic at the presence of a palatable, somewhat visible lymph node after going to get it checked out?

    I have tried telling myself I am not allowed to touch it for a period of days and this sometimes works and other times doesn’t.

  2. #2
    Join Date
    Sep 2010

    Re: How do you learn to live with a “shotty” node?

    Went through this about 10 years ago. Many doctors appointments later, ultrasound, blood tests and finally being referred to a specialist (endocrinologist/general surgeon) for opinion, had CT scan then this specialist said he was convinced it was nothing (just a shorty node). It’s about 2cm, long and thin shape, in my groin. Dr said he wouldn’t biopsy as they’d have to take whole thing out and there was no point as he was convinced all fine. After that I accepted it...then moved on to the next health anxiety thing and forgot about it. It’s still there 10 years later, and so am I!

  3. #3
    Join Date
    Mar 2016

    Re: How do you learn to live with a “shotty” node?

    It's happening again..

    Every time I see this thread title, I see it as 'How do you learn to live with a snotty nose'

    Help. Me.
    I'm not afraid of death because I don't believe in it. It's just getting out of one car, and into another. ~ John Lennon

  4. #4
    Join Date
    Mar 2011

    Re: How do you learn to live with a “shotty” node?

    Lol at Nora :-)

    Worry wart, I've gone through the node thing it's horrid.
    When my son's dr told me nodes react easily but they have a very poor drainage system and can remain enlarged forever, they even can scar and then for sure stay enlarged. That helped me.

    The nodes I freaked out about when my son was little are still there and he's 27.

  5. #5
    Join Date
    Aug 2013

    Re: How do you learn to live with a “shotty” node?

    How do you learn to live with any physical anomaly or issue? The simple answer is "You just do". I suffer several physical issues due to the side effects of heart disease, cancer treatment and the medications I take. Add age to the equation and yeah, sometimes it really sucks. But what choice do we have?

    I've posted this quote many times and I really try to do my best to follow it.

    “The longer I live, the more I realize the impact of attitude on life. Attitude, to me, is more important than facts. It is more important than the past, the education, the money, than circumstances, than failure, than successes, than what other people think or say or do. It is more important than appearance, giftedness or skill. It will make or break a company... a church... a home. The remarkable thing is we have a choice everyday regarding the attitude we will embrace for that day. We cannot change our past... we cannot change the fact that people will act in a certain way. We cannot change the inevitable. The only thing we can do is play on the one string we have, and that is our attitude. I am convinced that life is 10% what happens to me and 90% of how I react to it. And so it is with you... we are in charge of our Attitudes.”

    ― Charles R. Swindoll

    Its not easy by any means and often times we fail at doing so but we have to wake up each day and try and it applies to mental as well as physical challenges. The "Positive Thoughts" thread I started several years ago is something I shared as its what I do everyday. I get positive quotes sent to my email daily. Many of which I post here. I often print them and post them on the bathroom mirror or some other place I'll see it regularly to help remind me about maintaining a positive attitude.

    The reality is, that shotty node is not going to change and its harmless
    Accept it and live your life... And read the quote in my signature. That's another one I try to live by every day.

    Positive thoughts
    "Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon

    The best help is the help you give yourself!

  6. #6
    Join Date
    Aug 2019

    Re: How do you learn to live with a “shotty” node?


    For me it happened through challenging my unhelpful thoughts. Anytime I would have an anxiety inducing thought about my shotty node, I would just challenge the thought by saying, "it hasn't changed in years, I have no other symptoms, its nothing." Then I move on. Like Fish said, "you just do." It takes practice and effort but you can get there.

    Best Wishes.
    I asked myself one day, "What if I actually don't have cancer? What if I'm not really dying? Then surely I'm alive and should be living."

    Not a doctor or a psychologist, just a guy who's been to a lot of them.

  7. #7
    Join Date
    Nov 2018

    Re: How do you learn to live with a “shotty” node?

    I loved waking up this morning to read these replies. It helps with my attitude today already. Thank you guys.

  8. #8
    Join Date
    Sep 2020

    Re: How do you learn to live with a “shotty” node?

    I have one in my neck. It swelled up really big back in 2017 when I got hit with a stomach virus and a cold at the same time. It is noticeably bigger than the other side and sometimes swells bigger when I get sick or have a sore throat. It also swells if I poke at it so I definitely advise against touching it much. The doctor told me not to worry and it hasn't changed in 3 years so I figure its probably fine.

  9. #9
    Join Date
    Sep 2011

    Re: How do you learn to live with a “shotty” node?

    I have one (I think) behind my ear and one that was under my jaw. I noticed both in middle school I think (I'm almost 30 now) but have vague memories of noticing them when I was much younger. They were the kick off on my HA spiral. I was so afraid to say anything about them because I thought I'd be diagnosed with something awful. I also didn't want to upset my parents. But for years I was afraid I was going to die at any minute and I was afraid to do things like raise my head in case a friend noticed and freaked out (unrelated, but I had an incident where I had ringworm and one of my friends convinced me it was lyme disease and that I was going to die).

    Then, when I was in college other life things happened that drove my anxiety into overdrive. Finally I said enough and I had my doctor take a look. Obviously having had them for almost 10 years at least at that point it could be assumed that they weren't harmful, but my doctor confirmed. It was a huge weight off my shoulders.

    The one behind my ear is still there. The one under my jaw is gone.

    Like everything else with anxiety, it's a process. There are times when you are flying high and times when you hit a low. I suppose that's what coping mechanisms are for.

    I still go a little bit crazy sometimes...
    but now I don't stay near as long.

    [Mostly] managing anxiety, HA, and depression.

  10. #10
    Join Date
    Jul 2015

    Re: How do you learn to live with a “shotty” node?

    I've got a fair few, one on my neck for about 6 years now. My sister has one too similar place that was up during an infection and didn't go down. I was convinced this was something awful but doctor at the time just said we can feel them. He has some and got me to feel his (bit weird now thinking about it)

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