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Thread: Als scares

  1. #151
    Join Date
    Dec 2020
    Posts
    90

    Re: Als scares

    I’ve been working on it but it seems like something new comes every week. Now I have begun feeling twitching in my throat inside and out and definitely noticed my mouth feels tired after eating very little

  2. #152
    Join Date
    Jan 2021
    Posts
    43

    Re: Als scares

    I’m convinced I have hand atrophy now so I’m not doing well either. Sending you positive vibes. Maybe book a neuro so you can calm down.

  3. #153
    Join Date
    May 2008
    Posts
    1,979

    Re: Als scares

    Just wanting to say hi, and join the als worried club! I have twitching in my shoulders and what I believe to be weakness..... so I feel your pain! X

  4. #154
    Join Date
    Dec 2020
    Posts
    90

    Re: Als scares

    Was doing a little better for a little bit of time. Visited here just to see updates from people. But as much as I tried to stay away and feel better I couldn’t fully get there. I’m starting to worry more now as my tongue seems to twitch more and my throat always feels full to the point I can’t really talk in the mornings. I also feel like my mouth is tired when I chew and that I don’t fully chew my food because of it and it’s harder to get down

  5. #155
    Join Date
    Aug 2013
    Posts
    24,667

    Re: Als scares

    This thread started 6 months ago. Sorry to see you still struggling due to this unfounded fear :( Hope you feel better soon.

    FMP
    __________________
    "Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon

    The best help is the help you give yourself! http://cbt4panic.org/

  6. #156
    Join Date
    Dec 2020
    Posts
    90

    Re: Als scares

    Came on here 7 months ago thinking I had limb onset als that then turned to bulbar als. This was all right after I convinced myself I had cancer for a few months. I can now say I’m out of those fears. I have twitches, my voice sounds weird but it’s all in my head. I had every symptom I could think of but none of it truly existed. Just wanted to update on here. I’m free of the negative health thoughts and just trying to enjoy the time I have here. Thank you to everyone who talked to me throughout this whole process as well

  7. #157
    Join Date
    May 2008
    Posts
    1,979

    Re: Als scares

    Thank you so much for such a lovely update. It’s good to hear good news :-)

  8. #158
    Join Date
    Dec 2020
    Posts
    90

    Re: Als scares

    Thought I was going to get better and honestly did feel better for a while. This weekend it hit me and I noticed I was having trouble talking more than a few words. My tongue feels stuck like it’s not moving correctly and my jaw feels tight. I am having tons of saliva to the point it feels like my voice sounds like I have a mouthful of water. Idk what’s going on. I get random bouts of emotions like crying or laughing. Really concerned again but this time it feels like it’s real and not just in my head

  9. #159
    Join Date
    Jan 2016
    Posts
    1,492

    Re: Als scares

    Go back and review how you were felling July 27th. How did you get to that place? The place where your fears had been beaten and the negative health thoughts had been gone. Try to get back to that place.

    the nature of HA makes us feel like it’s ALWAYS real and NEVER just in our head. That’s what you have to get past, don’t let your brain trick you into thinking it’s real.

  10. #160
    Join Date
    Dec 2020
    Posts
    90

    Re: Als scares

    I appreciate the support @glassgirlw something just feels off. My throat seems like it’s very weak and my tongue feels stiff. Idk what’s going on

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