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Thread: Diagnosed with crohns and uc need advice plz.

  1. #1

    Diagnosed with crohns and uc need advice plz.

    Hi,
    I am having a hard time lately. I was diagnosed with crohns and ulcerative colitis (pancolitis.) I was put on prednisone and started a biologic...it all happened so fast.I don't know what to do.Not sure what to eat,the doctors just tell me to eat everything and be healthy.When I listen to them it's worse,but when I eat foods that are easy on my system I live on white rice and skinless chicken.I am confused.If I leave the house I just starve because I won't risk eating before I go to the store.
    The doctor says we are trying the drug,I've had 4 infusions and dont feel anything changing (except I now have bad headaches and rashes.)
    The doctors seem to have a "you're sick,what do you expect" attitude to any questions I have.
    Can anyone let me know what to expect or what you eat or how to cope?

  2. #2
    Join Date
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    Re: Diagnosed with crohns and uc need advice plz.

    I have Crohn's and you really need to talk to someone about your specific diet as I have things I can't eat but that may not be the same for you.

    So tell them you need some advice with it all.
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

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  3. #3
    Join Date
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    Re: Diagnosed with crohns and uc need advice plz.

    My Nephew has Crohns, his diet is pretty specific on advice from his consultant etc.
    I can't believe your doctors have told you to eat anything and everything!
    You need proper advice.

  4. #4
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    Re: Diagnosed with crohns and uc need advice plz.

    I agree - you can't just eat anything and everything. You need proper dietitian advice on this.
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

    Please help keep NMP running and donate to the running costs: http://www.nomorepanic.co.uk/donate




  5. #5

    Re: Diagnosed with crohns and uc need advice plz.

    I had a feeling the doctor wasn't being helpful...Any questions I had were answered with"lets try the drugs, wait and see"
    Have you tried biologics with any success? The side effects are scary.

    Thanks for your help.

  6. #6
    Join Date
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    Re: Diagnosed with crohns and uc need advice plz.

    I don't even know what they are sorry.
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

    Please help keep NMP running and donate to the running costs: http://www.nomorepanic.co.uk/donate




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