Dad is coughing up black lumps of blood, awaiting results, absolutely terrified.

[JValentine]

Hi Pulisa,

Yes I agree, don't want him to suffer chemo unnecessarily, praying they find a good match. On the other hand I don't want it to get any worse! I trust in the doctors though x

[Carys]

Hiyer J,

Its really good that they are sending the biopsies off for really specialist matches to chemo. I think, NICE guidelines specify that treatment should start within 2 months of diagnosis (though I agree it sounds and feels like a long time when it is your family member waiting), but of course you can ask any questions you have of the MacM nurses. I'm glad you are bearing up x

[pulisa]

Yes I think you should ask the MacMillan nurses as many questions as you need to because they will have the answers and will be readily available.

I hope you are managing at work and that things are not too overwhelming for you at home. You must be exhausted xx

[Carys]

How are things with you and your family JV ?

[JValentine]

Hiyer J,

Its really good that they are sending the biopsies off for really specialist matches to chemo. I think, NICE guidelines specify that treatment should start within 2 months of diagnosis (though I agree it sounds and feels like a long time when it is your family member waiting), but of course you can ask any questions you have of the MacM nurses. I'm glad you are bearing up x

Thanks for that Carys ❤

Yes I think you should ask the MacMillan nurses as many questions as you need to because they will have the answers and will be readily available.

I hope you are managing at work and that things are not too overwhelming for you at home. You must be exhausted xx

Yes I'm doing OK to be honest. Dad is carrying on as normal and we are viewing the whole thing as he will live with this cancer and that (hopefully) it won't kill him in 6 months, he will live with this for a few years. A lot of people at work have friends and family who were told not curable but treatable and are still here 4-10 years later. X

How are things with you and your family JV ?

We're doing OK thanks Carys. Getting on with life really. I'm very touched you thought of me ❤ xxx

[pulisa]

You've all got a great attitude to the diagnosis but I'm sure it can't be easy for you. I hope you soon get some definitive news about the chemo treatment and that the Italian doctors are able to identify what will work best for your dad. He does sound like an incredibly strong man who is getting on with his life and taking things one step at a time.

Take care, JV and please write on here if you need us in any way xx

[JValentine]

You've all got a great attitude to the diagnosis but I'm sure it can't be easy for you. I hope you soon get some definitive news about the chemo treatment and that the Italian doctors are able to identify what will work best for your dad. He does sound like an incredibly strong man who is getting on with his life and taking things one step at a time.

Take care, JV and please write on here if you need us in any way xx

Thank you so very much ❤ I will x

[JValentine]

Dad just called, his oncology doctors secretary called today asking dad to go in Tuesday for an appointment.

She said make sure you bring someone with you.

😞 more blimmin worry. Really hope they aren't going to go back on their it's treatable diagnosis!

They wouldn't do that would they?

[pulisa]

They could have got some definitive news re the type of treatment that has been chosen for him so they will start sooner than expected?

Obviously it's all the unknown which is terribly stressful but try not to assume that he will be getting bad news? It would be wrong of them to have given you false hope when you first heard the results. What did your dad say?

[JValentine]

They could have got some definitive news re the type of treatment that has been chosen for him so they will start sooner than expected?

Obviously it's all the unknown which is terribly stressful but try not to assume that he will be getting bad news? It would be wrong of them to have given you false hope when you first heard the results. What did your dad say?

Hi Pulisa, thanks for replying.

I actually chatted to a macmillan nurse online and she said they give a few weeks/month to come up with a treatment plan and get all results in. So being called early usually means its because they have all the information they need and are ready to take the next steps. Not necessarily good or bad. I told dad this and he said I was a darling 🥲

So I am relieved for now.

Thanks for responding. Xx