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Thread: why no groups for h/a sufferers

  1. #11
    Join Date
    Oct 2016
    Posts
    3,425

    Re: why no groups for h/a sufferers

    Quote Originally Posted by Gizmo1946 View Post
    I am sorry to hear you would not like to meet up but i may add that groups do not need to be boring or tedious.
    I am a stage 3 cancer hopefully survivor and up until covid i was in a cancer group.We were anything but bored yes we did discuss our different cancers but we did not dwell on things.We told jokes,made copious cups of tea and took biscuits.We played cards and the men talked football.Guests would come and give talks on diets and give mindfulness.All in all we became great friends and still phone each other from time to time.We had bus trips out,meals out,and a Christmas dinner together all of which my wife came along too.You have to use a little imagination for groups to work it is not all about what about this or that illness,they can be made a fun couple of hours,to actually take your mind off your problems and knowing the others in the group are just like you.By the way this group was formed by my local hospital and it certainly helped me along my cancer journey i hope we get together again in the future.
    That group sounds awesome. Such a shame that covid has meant that so many support outlets need to close. I hope it opens again.

    Iím not sure how old you are or even where you live, but could you see if you have a men in sheds in your area? Itís a fabulous initiative from age UK.

    I hope you donít think I was making fun of you, Iím a bit like Blue Iris in that I try to see the lighter side of HA sometimes.


    Sent from my iPhone using Tapatalk

  2. #12

    Re: why no groups for h/a sufferers

    I hope you do scass just because you join a group does not mean you have to go to every meeting.Of course you can drop in or out whenever you wish.Some did it made no difference if they came back at any time because they were struggling with cancer treatment we were there to help.No one was forced to attend all meetings that would not work in any group,same as H/A you may not always need help, but when you do it is good to know help is there if you want it,is it not?

  3. #13
    Join Date
    Apr 2019
    Posts
    316

    Re: why no groups for h/a sufferers

    I think a face to face group when safe is a good idea. If nothing else you get a change of scenery.

  4. #14
    Join Date
    Apr 2013
    Posts
    465

    Re: why no groups for h/a sufferers

    I have met people from a group on Facebook and we will be lifelong friends! I live in Scotland and travelled to Cambridge in 2017 to meet up with 6/7 others from all over the UK for a boozy catch up! It was amazing. Also had someone from Australia and the US visit Edinburgh and have met up when they were here. It’s an incredible group of people who all help in their own way. It’s a recovery group rather than a full on HA group.... but they are the best people! Very rarely is it anxiety chat now, we’ve been part of the group about 6 years now I think!

  5. #15
    Join Date
    May 2014
    Posts
    7,510

    Re: why no groups for h/a sufferers

    I think I get where you are coming from Gizmo.
    Isn't it more like meeting up with like minded people who really do understand the off days and are more understanding than shall we say a normal person who may not be concerned about an unexplained symptom that for us is linked to anxiety?
    I do try to laugh off my symptoms most of the time but I feel you are exempt from normal society friendship and that's why we are on here.
    Some have been lucky to strike up friendships by private messaging regularly, but many on here do not have that.
    So a place to go now and then I think would be a good idea on theory. The practice side of that Group could be overwhelming with potentially thousands of people that unfortunately only talk about their ailments and nothing else. So maybe it is better to form smaller groups and allow those to form naturally.
    Some people do this by creating a thread and then members who feel they have a connection will chat to you. Some will form a stronger bond, especially if you have a lot in common.
    Hope some of this helps.

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