Originally Posted by
Rise1220
I have been in an ALS fear zone on and off for about 5 years. 5 years ago I started with the typical symptoms of twitching and what I believed was weakness in my legs and hands. I went to two different neurologists and had two EMGs clearing me of ALS. I was so convinced that I had it that my neurologist sent me for MRIs, swallowing tests, etc. After all was cleared, I decided to see a professional therapist. It helped and I was able to stop obsessing. Fast forward 5 years....
Well, about a month ago my ALS fears started coming back. I started having a weird feeling in my hand especially in my thumb. It feels like I am having dexterity issues. My thumb doesn't feel like my own. So, like I did in the past I started self testing. I started picking up coins, screws, and even bought a dexterity test to manipulate little rods into holes. I have been able to do all of it with no problem, but the thumb feeling remains. Around a week later the twitching returned, and has settled in my calves non stop almost for a month now, small pops happen.
I'm worried every day and can't stop thinking about ALS. I'm on forums and reading ALS stories trying to relate symptoms to my own.
It was very time consuming and expensive the first time around to get all the testing completed. I went on the ALS forum and posted again.
I was told not to worry about it cause in the 5 years if it was ALS I would have been fully compromised. I'm just wondering if ALS has been laying dormant and is finally coming full on and if its just a matter of time before the failures start coming.
I appreciate anyone's point of view and for reading this post. Take care.