I've been dealing with ALS anxiety for three months now. It feels like every time I start to get over it, something scares me and pulls me all the way back to square one.
It started when I noticed that my arms felt more tired than usual after doing things that were really simple. I now know that's not a symptom of ALS, but it planted a seed. From there, I started to spiral. I felt like my gait was off, that my hands were clumsy and uncoordinated, that I was having trouble swallowing, and of course, I was--and still am--twitching a lot more that usual. I took up lifting to help confirm to myself that my muscles are working as they should, but I'd have days where I felt better and days where I felt worse, but it was always in the back of my mind.
And so it continued to today, where I noticed two things: one, my left hand just started shaking out of nowhere, and it was only my left hand. Fortunately, it has stopped now, but it freaked me out. Two, I noticed that the right corner of my lip won't move like the left. Because of it, my facial expressions are uneven. This is what has freaked me out the most out of everything. I know that ALS is about failing and not feeling, but it seems like I'm failing. I'm not sure what to do.
Does anyone have any advice?
Reply With Quote
