Awaiting scan after high ca125 test

[Starburst8]

Hi everyone,

Update from me.. My TVUS was clear! They re-did bloods and I'm likely going to have a laproscopy and tube removal. I feel very mixed... Relieved.. But desperately sad for my friend...and emotionally wrung out.

I hope this post helps anyone else facing a high ca125 in the future xxx

[pulisa]

I'm very relieved for you but understand your mixed feelings. You must be mentally exhausted..and need to grieve for your friend and recover from your own ordeal xx

[jojo2316]

Wonderful news….. but probably also bitter sweet in the light of your poor friend xx

[Starburst8]

Another update from me.

So my repeat ca125 is in and the doctor wants to speak to me on the phone on Monday. This is a bit triggering... But hopefully it's all OK. I don't know what the repeat level is.

[Starburst8]

Oh Gosh... Having a meltdown. My ca125 was 128 when I was tested a couple of weeks ago. 😭. Literally having a meltdown. My ultrasound of my Ovaries was clear... But what if something else is going on??

I'm having another ca125 this week and if that's raised an MRI. I don't have fibroids or anything like that.

[Scass]

I know it’s worrying, you’ve been up and down in emotions. But it’s good that they are checking to find out the reason. Did you ask what they were looking for?

[Limeslime]

Can I just say again how much I hate this blood test!
Were you on your period or ovulating when you had the most recent test done?
I was able to get my levels down from 88 to 25 by a combination of choosing my times wisely to get the blood test done (beware of how much a ca125 can be affected by menstruation) and by doing a 7 day cleanse beforehand. I cut out caffeine and followed the Terri-Ann 7 Day Cleanse. I can’t promise it will work for everyone, but it helped me deal mentally with the anxiety because I felt like I was being pro-active.
Plus, you can be very reassured by your TVUS being clear!!
Chances are, you’re having a bout of IBS, or it’s just where you are in your cycle.
These tests are not fit for purpose in women who are still having periods!

[Starburst8]

Thank you both for your replies. I've calmed down now. I thought it might raise a bit but that was an unexpected rise!!! I thought I'd keep my updates on this thread so that the next poor soul who has a raised ca125 can see how problematic it can be! Limeslime - I was on day 5 so period just finishing - there was still some v small amount of blood when he scanned. That's probably whats done it... But he was quite surprised that it almost tripled... That's quite some rise!

I had the GP give me a pelvic exam yesterday which was OK - all normal - so that's helped the worry a bit. She also said all my other bloods were fine.
Had a third lot of bloods taken today and hoping the ca125 is normal, but I'd take lower at this point!

I'm reassured I don't have ovarian cancer but I can't rid the worry that there's something else going on.

[Starburst8]

I'm also going to try the Terri Ann cleanse... Never heard of it but will give it a go if it worked for you!

[Starburst8]

Argh... Results are back and I have to speak with the consultant tomorrow. 😭