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Thread: Awaiting scan after high ca125 test

  1. #31
    Join Date
    Mar 2018
    Posts
    574

    Re: Awaiting scan after high ca125 test

    Do you know anything about the results yet?

    I think after x3 high results, they will offer a CT scan, then if that is clear but ca125 continues to rise, they may offer a laparoscopy. Hopefully it won’t come to that, but this may be what the consultant will discuss with you.

    I don’t know if you’ve had a hysteroscopy yet, but they may suggest doing that tomorrow too. I had that done at my appointment with the consultant, and despite what Id read online, it was completely painless!!

    I also have to see my consultant again tomorrow too (breast) so I know the fear is real. Hugs.
    Last edited by Limeslime; 19-05-22 at 14:23.

  2. #32
    Join Date
    Oct 2016
    Posts
    4,185

    Re: Awaiting scan after high ca125 test

    Quote Originally Posted by Starburst8 View Post
    Argh... Results are back and I have to speak with the consultant tomorrow.
    We’ll be here xx

  3. #33

    Re: Awaiting scan after high ca125 test

    Hi Limeslime,

    I was wondering how you were getting on and hoping you would post. I'm speaking with the consultant tomorrow so fingers crossed. I had a thorough check with another ultrasound scan - somewhere I really trust and they were so much better and reassuring. My Uterus, cervix and Ovaries are definitely clear. Im basically going through a process of body part check elimination!!!

    He said I'd have an MRI if it comes back high again.... I just hope its not gone higher than 128....

    I'm on the fence at the moment as to whether this test is a blessing or a curse!

    Good luck with your breast check... Let me know how you get on. Xxx

  4. #34

    Re: Awaiting scan after high ca125 test

    Thanks scass xxx

  5. #35

    Re: Awaiting scan after high ca125 test

    Well after:
    Ca125 test 1 = 47
    Ca125 test 2 = 148(!)

    My third test was.... Drum roll... 32!!!!!!
    Diagnosis: endometriosis and adenomyosis.

  6. #36
    Join Date
    Mar 2018
    Posts
    574

    Re: Awaiting scan after high ca125 test

    Yeeeeey!!!!! Amazing news!!!
    (Freaking hate that blood test!)

  7. #37
    Join Date
    Oct 2016
    Posts
    4,185

    Re: Awaiting scan after high ca125 test

    Quote Originally Posted by Starburst8 View Post
    Well after:
    Ca125 test 1 = 47
    Ca125 test 2 = 148(!)

    My third test was.... Drum roll... 32!!!!!!
    Diagnosis: endometriosis and adenomyosis.
    Oh wow! Thank you for updating. You must feel soooo relieved. Thrilled for you x

  8. #38

    Re: Awaiting scan after high ca125 test

    Really pleased for you, and sorry for all the stress and anxiety you’ve been through. Take care

  9. #39
    Join Date
    Oct 2022
    Posts
    10

    Re: Awaiting scan after high ca125 test

    Hi everyone,

    I really just wanted to weigh in on this thread. I one million percent agree with limeslime that this blood test should not be allowed in premenopausal women!!

    4 years ago (age 21) I had the test done and it came back 35, right on the line so my doctor referred me for an urgent ultrasound anyway… all clear.

    I left it at this and fast forward 4 years (now 25) I went to the doctor with bowel issues, they ran the ca125 test and it came back 52! (I was day 1 of period). This led to a downward spiral of HA and pure panic that I booked a private US.. it was clear. For my anxiety this wasn’t good enough, so I booked a private consultation with a gynae. She said that this test is raised for so many reasons in pre menopausal women however for my own peace of mind she would do a hysteroscopy (which doesn’t even show ovaries but who am I to argue). So I have that next month. My mind has gone around every alternative possible cancer that could have caused the rise from breast to bowel.

    Despite knowing the high rate of false positives associated with this stupid test, I’m still freaking out. I .hate .this .test.

    I hope everyone is doing good xx

  10. #40

    Re: Awaiting scan after high ca125 test

    Going through this at the moment. CA 125 over 100 … will be having the cyst removed but is it really true that benign growths can elevate this test result ? I cannot seem to find a definitive answer

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