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Thread: ALS Fear and struggling

  1. #1
    Join Date
    Mar 2019
    Posts
    57

    ALS Fear and struggling

    Hi folks...I know there are many threads and I have been reading up. Just wanted to voice that I have been in ALS rabbit hole for past 48 hours. 47 year old male...Started with my right foot feeling tight and like I cant lift my toes as far as I normally can, thinking foot and shin is getting weaker and my shin muscle is sore. I started wearing flip flops about a week ago on and off, but still I go down rabbit hole....Therefore, of course, I went to ALS rabbit hole thinking I want to watch my kids grow up. Not much else, just really sad as I have ben doin geeks for a while. This fear is intense. Sorry to vent, just wanted to get this out to a group I feel safe with. All the best to everyone.
    Last edited by 4bready; 01-07-22 at 14:51.

  2. #2
    Join Date
    Apr 2003
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    46,281

    Re: ALS Fear and struggling

    Hi

    This is just a courtesy reply to let you know that your post was moved from its original place to a sub-forum that is more relevant to your issue.

    This is nothing personal - it just enables us to keep posts about the same problems in the relevant forums so other members with any experience with the issues can find them more easily.

    Please also read this post:

    http://www.nomorepanic.co.uk/showthread.php?t=213239
    __________________
    Nicola

    “Don't be afraid of death; be afraid of an unlived life. You don't have to live forever, you just have to live.” - Natalie Babbitt

    Please help keep NMP running and donate to the running costs: http://www.nomorepanic.co.uk/donate




  3. #3
    Join Date
    Mar 2016
    Posts
    3,904

    Re: ALS Fear and struggling

    Quote Originally Posted by 4bready View Post
    Hi folks...I know there are many threads and I have been reading up. Just wanted to voice that I have been in ALS rabbit hole for past 48 hours. 47 year old male...Started with my right foot feeling tight and like I cant lift my toes as far as I normally can, thinking foot and shin is getting weaker and my shin muscle is sore. I started wearing flip flops about a week ago on and off, but still I go down rabbit hole....Therefore, of course, I went to ALS rabbit hole thinking I want to watch my kids grow up. Not much else, just really sad as I have ben doin geeks for a while. This fear is intense. Sorry to vent, just wanted to get this out to a group I feel safe with. All the best to everyone.
    Straight away we have cause and effect. We walk differently wearing flip-flops because there is almost no support. You'll be using muscles in your feet that you're not used to using. Nothing to do with ALS...(but I think you know this)
    __________________
    A thought is harmless unless we believe it.

  4. #4
    Join Date
    May 2008
    Posts
    1,847

    Re: ALS Fear and struggling

    Quote Originally Posted by 4bready View Post
    Hi folks...I know there are many threads and I have been reading up. Just wanted to voice that I have been in ALS rabbit hole for past 48 hours. 47 year old male...Started with my right foot feeling tight and like I cant lift my toes as far as I normally can, thinking foot and shin is getting weaker and my shin muscle is sore. I started wearing flip flops about a week ago on and off, but still I go down rabbit hole....Therefore, of course, I went to ALS rabbit hole thinking I want to watch my kids grow up. Not much else, just really sad as I have ben doin geeks for a while. This fear is intense. Sorry to vent, just wanted to get this out to a group I feel safe with. All the best to everyone.
    Hello from down in the hole. My first thought, weirdly, was one of envy because you’ve only been down here for 48 hrs. It’s the flip flops. Get out while you still can!! Good luck

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