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Thread: I've been completely failed by the NHS in this area possible 10 years of mistreatment

  1. #1
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    Jul 2016
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    I've been completely failed by the NHS in this area possible 10 years of mistreatment

    Well, well, well. Another failure on the part of the NHS, specifically the mental health services in my area.

    Remember I requested my medical records to get my legal script for cannabis? Well,
    I didn't bother to read it. I forwarded it to the doctor who approved my script and that was that. I no longer use cannabis, I tried it, and it didn't really help me.

    Anyway, I was browsing through my medical records last night having a read. It's concerning to say the least. I have panic disorder, agoraphobia, and panic attacks listed as active issues. But, there's nothing about Aspergers. Nada.

    This is concerning. I have informed my doctor and psychiatrist numerous times to my diagnosis, so why haven't they listened?

    An hour ago I received the original diagnosis documents from the surgery in my old area who do have it on their system. Everything is listed, the entire diagnosis and it includes potential treatment.

    This was done in 2014. So from 2014 up until now I've likely been receiving incorrect treatment. Potentially damaging too because Quetapine require regular ECGs.

    I've been on the phone to the mental health services who have said to reach out to my doctor. I don't have a doctor, only a number to call to order my script. It's an angry patient scheme. It's shocking the team who provide my care are unable/unwilling to update my records. I've sent these documents to them!

    Rather than them address the issues making me angry, which is likely a result of having Aspergers, they've lumped me under some BS.

    It says on my records "Dangerous alcohol consumption" and "high risk drug addiction". These are active.

    I haven't drank like that for ages. They know this. I have also never touched a drug in my life except cannabis years ago, and recently with my script. I'm surprised I got approved for cannabis tbh with records like that.

    It's disgusting. I'm upset. I'm shaking. I'm scared to take my medications. I've vomited this morning because I'm so nervous.

    I've managed to shoot an email out to all the directors of the NHS, and some other top people that can help. I've had to do this before, and it does get result. I've sent the documents along and requested somebody call me to discuss this.

    I just can't believe that it's possible I've been mistreated for 10 years because professionals haven't even bothered to collect my records. Heck, I told my doctor on my last assesement to reach out to my old surgery! And they didn't.

    I'm livid.
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  2. #2
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    Re: I've been completely failed by the NHS in this area possible 10 years of mistreat

    I've now got an appointment for next week to take in the documents and discuss. Why? It's all there in black and white. I can't talk to people face-to-face I shut down. I don't discuss what's on my mind. Feels like I've been naughty at school and have to see the headmaster. I really can't deal with this.
    __________________
    The large print giveth, and the small print taketh away.

    I would rather have questions that can't be answered than answers that can't be questioned. - Richard Feynman

    ☪️️

  3. #3
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    Mar 2020
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    Re: I've been completely failed by the NHS in this area possible 10 years of mistreat

    I know the feeling all too well myself.

    I feel that us Auties have exponentially been ridden roughshod over not just for the past 10 years but since time immemorial, irrespective of PM/political party in power, the general state of the economy, etc.

    I think the authorities and society in general have always revelled in treating us like sh1te, no matter what.

    And like I said in another thread earlier today, it does seem that many 'professionals' have become increasingly up themselves over the past 20-odd years or so, and even well before all this austerity lark and of course the recent Covid pandemic.

  4. #4
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    Re: I've been completely failed by the NHS in this area possible 10 years of mistreat

    Quote Originally Posted by WiredIncorrectly View Post
    I've now got an appointment for next week to take in the documents and discuss. Why? It's all there in black and white. I can't talk to people face-to-face I shut down. I don't discuss what's on my mind. Feels like I've been naughty at school and have to see the headmaster. I really can't deal with this.
    I'm just so grateful we're both no longer at bloody school. More like being in jail at times, the way some kids sadly get treated, even though headteachers can no longer legally exercise brutality against pupils/students, which I'm sure quite a few gleefully revelled in prior to 1986.

    Makes me wonder how many 'bent' teachers there were back in those 'not-so-good old days'?

  5. #5
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    Re: I've been completely failed by the NHS in this area possible 10 years of mistreat

    Hello James

    You would have needed an official diagnosis of ASD from a psychiatrist or an ASD assessment team in order for the diagnosis to be recognised by primary care. Did you go through this lengthy process in 2014 or was it a GP's opinion? Does your current psychiatrist treat you as having ASD?

    My son is on a high dose of quetiapine and doesn't have to have regular ECGs. Just yearly bloods. He does have a heart defect anyway but the quetiapine has never been considered a risk.

    I'd just be careful about next weks appointment..Can you get an advocate or someone to support and speak for you if necessary? You really don't want to say something you regret because you need to have access to a GP service for medication.

  6. #6
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    Re: I've been completely failed by the NHS in this area possible 10 years of mistreat

    Quote Originally Posted by pulisa View Post
    Hello James

    You would have needed an official diagnosis of ASD from a psychiatrist or an ASD assessment team in order for the diagnosis to be recognised by primary care. Did you go through this lengthy process in 2014 or was it a GP's opinion? Does your current psychiatrist treat you as having ASD?

    My son is on a high dose of quetiapine and doesn't have to have regular ECGs. Just yearly bloods. He does have a heart defect anyway but the quetiapine has never been considered a risk.

    I'd just be careful about next weks appointment..Can you get an advocate or someone to support and speak for you if necessary? You really don't want to say something you regret because you need to have access to a GP service for medication.
    Pulisa, I know this is James's thread but I can't help asking how you're keeping as we only tend to hear from you on here rather sporadically these days (no criticism intended)?

    As you can probably guess from my latest posts, I'm generally up and down ATM, varying from one day to the next.

  7. #7
    Join Date
    May 2018
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    81

    Re: I've been completely failed by the NHS in this area possible 10 years of mistreat

    Tories. Blame them. They're even gonna be making benefit changes, so your money could be getting cut.

    I may just post on forums now at the end of a month, like during the last weekend to wane off the monotony. Compared to 20 years ago, message boards have gotten to be so... dead? Plus, I just find I repeat myself a lot about video games, or whatever. But I generally find it hard to talk about things when my routine never changes.

  8. #8
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    Re: I've been completely failed by the NHS in this area possible 10 years of mistreat

    Quote Originally Posted by Peter A View Post
    Tories. Blame them. They're even gonna be making benefit changes, so your money could be getting cut.

    I may just post on forums now at the end of a month, like during the last weekend to wane off the monotony. Compared to 20 years ago, message boards have gotten to be so... dead? Plus, I just find I repeat myself a lot about video games, or whatever. But I generally find it hard to talk about things when my routine never changes.
    I agree, that's why they need to be voted out on 4th July.

    But I hope to God they're not replaced by Reform UK, who I think are actually even worse.

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