is this is the end for me

[daveyb1982]

Im a 42y year old man who is a father of one who believes that i have bulbar als, i started having issues in may 24 when thinking i had colon cancer based off blood in stool which was found to be non cancerous, during that period i didn't eat or drink found it hard to swallow and had uncontrollable crying which i believe to be emotional lability now. since then i haven't been same person, my swallowing hasn't improved even though i haven't choked as of yet but i have all of a sudden become breathless ness very easily even climbing stairs . I have also struggled to sleep thru night and have not started waking up with morning headaches aNd believe my hands and legs have atrophied not to mention speaking feels like an effort now and feel ive got a permeantchest infection, i saw a neurologist in sept 24 who advised no sign of als/mnd and said it was fnd
.Since then the symptoms have progressed , i have regular twitching in my calfs, the morning headaches and chest pain is worse , i struggle to exhale and i have issues with fine motor skills, and to add to my concern there is a blue tint to my lips. i also believe i have ftd as my memory is terrible now as forget tings i did 30 seconds after, i am so scared right now as its got als/mnd all over it and i dont want to die and im really bscared . any support or suggestions would be great, my neurologist is refusing to see me stating its fnd even tho some of symptoms don't add up. i had emg and ncs in march normal but fear its been missed :(

[Sparkling_Fairy]

ALS was my first fear and it gripped me like nothing else. It's a terrible fear to have, so I get it!
But I have had all of your symptoms over the past 10 years, and in fact still have most of them today and I'm fine. I usually start my day with two paracetamol from the major headache I wake up with, which I attribute to my jaw clenching at night from pure stress. I had muscle twitching all over my body 24/7 for the first year of my anxiety. And now 9 years later I still get it when I'm really upset about something, it's like my nervous system misfiring. I'm out of breath going up the stairs all the time, and I have shortness of breath a lot but it's hyperventilation.
Literally every single one of your symptoms can be explained by anxiety. And trust me, you don't have to "feel" anxious for them to be there. It's when your nervous system has been overloaded for too long and just can't regulate itself well anymore. And that can take a long time to restore, so you can feel all these symptoms without necessarily feeling anxious.

[daveyb1982]

u ever had blue lips cos thats whats worrying me as well as the breathlesnness?

[Sparkling_Fairy]

No, I've never had blue lips. if you truly have blue lips, and not just a hue, then I would say maybe get your GP to check you over.
My dad has blue lips but it's more like a hue, and he's absolutely fine.