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Thread: Optic neuritis and MS

  1. #1
    Join Date
    Apr 2008
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    108

    Optic neuritis and MS

    Hi was having a good few days but here I go again...

    As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.

    One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.

    I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.

    Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.

  2. #2

    Re: Optic neuritis and MS

    Quote Originally Posted by veebee View Post
    Hi was having a good few days but here I go again...

    As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.

    One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.

    I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.

    Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.


    Hi,
    I think optic neuritis is really painful, even your gp can tell you if its optic neuritis by looking at the back of your eye, they can tell if the optic nerve is swollen. I went to the neurologist convinced he'd say I had it and was totally amazed when he said my eyes were ok!!! I'm not an expert om MS, most of my info i from Dr. Google! but I think the blurryness you get with MS is different to what to are experiencing and a friend of a friend who has MS told me that the eye pain is acute.

    I spent months waiting for MS symptoms to appear, once I read about them then I'd get them but I know it was me making my brain look for them causing them to happen. My biggest fears where going blind and wetting myself! My doctor once asked if I'd had any 'accidents' so I took it that if that happened he too would think I had MS! I haven't wet myself.............yet!! lol

    My dizzyness turned out to be an inner ear thing and the tenderness behind my eyes was to do with my synuses, they go all around your eyes and forehead. When I get a cold/hayfever/bunged up the tenderness comes back so I just take sudafed or some other decongestant.

    I hope your MRI gives you peace of mind, but the thing to try and remember is that your neurologist will see peple with MS everyday and will know what he's looking for, when you have health anxiety its hard to trust anybody cos you think you know your own body best but thats not always the case cos this anxiety is a viscous circle, you have a symptom , you google it, convince yourself you have a serious disease, find you have even more symptoms than you started out with, it's never ending!!

    If you need to chat please feel free to pm cos I have been through everything you're going through and have come out the other end! Me and my family have a real laugh over my MS stage now - I used to make them video me walking in case my 'gait' was funny cos dr. google said it should be lol!!!!

  3. #3
    Join Date
    May 2008
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    267

    Re: Optic neuritis and MS

    Optic Neurosis usually involves the loss of sight in one eye etc or something like a black hole in your vision. If you had it you would know about it for sure. Nothing you have described sounds anything like it you will be glad to know.
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  4. #4
    Join Date
    May 2008
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    84

    Re: Optic neuritis and MS

    Quote Originally Posted by veebee View Post
    Hi was having a good few days but here I go again...

    As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.

    One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.

    I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.

    Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.

    Even though my MRI was negative ...... i think i want to see a Neuro and give them a clear description of my symptoms. Im sure they will be able to tell if they are real MS symptoms or if its MS, or some other disorder.

  5. #5
    Join Date
    May 2008
    Posts
    84

    Re: Optic neuritis and MS

    Quote Originally Posted by dumpling View Post
    Hi,
    I think optic neuritis is really painful, even your gp can tell you if its optic neuritis by looking at the back of your eye, they can tell if the optic nerve is swollen. I went to the neurologist convinced he'd say I had it and was totally amazed when he said my eyes were ok!!! I'm not an expert om MS, most of my info i from Dr. Google! but I think the blurryness you get with MS is different to what to are experiencing and a friend of a friend who has MS told me that the eye pain is acute.

    I spent months waiting for MS symptoms to appear, once I read about them then I'd get them but I know it was me making my brain look for them causing them to happen. My biggest fears where going blind and wetting myself! My doctor once asked if I'd had any 'accidents' so I took it that if that happened he too would think I had MS! I haven't wet myself.............yet!! lol

    My dizzyness turned out to be an inner ear thing and the tenderness behind my eyes was to do with my synuses, they go all around your eyes and forehead. When I get a cold/hayfever/bunged up the tenderness comes back so I just take sudafed or some other decongestant.

    I hope your MRI gives you peace of mind, but the thing to try and remember is that your neurologist will see peple with MS everyday and will know what he's looking for, when you have health anxiety its hard to trust anybody cos you think you know your own body best but thats not always the case cos this anxiety is a viscous circle, you have a symptom , you google it, convince yourself you have a serious disease, find you have even more symptoms than you started out with, it's never ending!!

    If you need to chat please feel free to pm cos I have been through everything you're going through and have come out the other end! Me and my family have a real laugh over my MS stage now - I used to make them video me walking in case my 'gait' was funny cos dr. google said it should be lol!!!!

    I had the inner ear infection too ....which commenced April 21st 08. 10 days later i noticed the leg and arm involuntary movements, or jerking as ive called it...... and then the muscle twitching started.

    Now ive noticed my distance vision is a tad out of focus ..... and i have to squint to get a clear image.... also noticed i cant reconise peoples faces from a distance. However i cant actaully remember if i had this problem before i started reading up on MS. Dont think i did. However it comes and goes. I can see in the distance fine today.

    Prior to that i have had strange feelings in my eye .... it felt blury but was more of a feeling that actual bluryness..... the optom said it was dry eye ....... who has given me drops but they are not working. Have an apointment with her on Friday.

    I also feel its never ending ... im getting really sick of it.

  6. #6
    Join Date
    May 2008
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    1,226

    Re: Optic neuritis and MS

    Quote Originally Posted by veebee View Post
    Hi was having a good few days but here I go again...

    As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.

    One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.

    I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.

    Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.

    As I have mentioned before the pains in your buttocks and down the backs of your legs sound very much like sciatica. I don't think the problem you are getting with them and your eye problem at related in any way at all.

  7. #7

    Re: Optic neuritis and MS

    Acrosplat,

    The 'blurry' thing you get is probably your labyrinthitris, my vision is sometimes very out of focus on far away things, i too have to squint alot!

  8. #8
    Join Date
    Apr 2008
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    108

    Re: Optic neuritis and MS

    Thanks guys, do you think its really possible to have a few separate things going on at the one time - such as, say, sciatica and anxiety?

  9. #9

    Re: Optic neuritis and MS

    Quote Originally Posted by veebee View Post
    Thanks guys, do you think its really possible to have a few separate things going on at the one time - such as, say, sciatica and anxiety?
    This is my worry Veebee. You and I share so many symptoms/fears!!!

    Today I'm aching like mad. My right forearm, legs and base of back and neck mainly. This is along with the never ending elbow and shoulder joint aches that are my constant companions.

    I'me seeing a Musclo-Skeletal specialist next week so am hopeful for a clearer view after that.

  10. #10
    Join Date
    May 2008
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    Re: Optic neuritis and MS

    Quote Originally Posted by veebee View Post
    Thanks guys, do you think its really possible to have a few separate things going on at the one time - such as, say, sciatica and anxiety?
    Yes it is quite possible. I suffer from at least 5 different things which I am on medication for and really exist. So don't worry

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