Originally Posted by
joewise
Hi everyone,
I have this problem, too. When mine happens, my vision gets extremely dim, each time my heart beats (it's like a power surge). Imagine installing a competition-grade stereo system in a car that has a bad battery. Then, turn on the headlights and crank up the stereo. With every beat of the music (you know, BOOM! BOOM! BOOM! BOOM!), your headlights get so dim, that they almost turn off, each time the bass hits (typical "guy" analogy - hehe).
In addition, there are times, when my upper body throbs/lunges, with each heartbeat. People have actually remarked on this, before.
I also suffer from MANY other (related?) symptoms, and have had them, for a very long time. Some of my related symptoms include:
Vasospasm - where my nipples, toes, fingers (and other extremities), turn white. This usually happens, when I'm cold.
Migraine - I get these, without the headaches. I get wavy lines, in my peripheral vision, similar to the haze that you sometimes see, when you pump gasoline (or, how it looks, when it is really hot and humid outside - imagine the desert).
Neuropathy - I get "pins and needles" pain, in my hands and feet, like when you sit on your legs and they "fall asleep" - that's what I feel, 24 hours a day.
Pain in my legs - I get this horrible pain in my legs, when it's cold outside or if I've been on my feet for too long.
Edema - my whole body is swollen, with fluid, especially my feet and legs - what's weird is, the right side of my body is MUCH larger than the left side. I look like one half of one person, stitched to one half of another person.
Seizures - lately, I've been having seizures (mainly on the left side of my body), which occur many times a day. I "spaz" up, on the left side of my body (from head to toe).
Floaters - I see silver, floating stars, in my vision, at different times throughout the day, even at rest.
Dyslexia - Lately, I have been transposing letters and numbers, when typing or reading (not just a little, either - I do it a lot).
Hyperekplexia (Exaggerated Startle Response) - I've had this, since birth, but lately, it has been a lot worse - Imagine yourself walking down a deserted road, late at night, just after having seen a horror movie about axe murderers on dark, deserted roads - and, then, someone jumps out, from behind a tree, at you! Think about what your reaction would be, and that's what I do, when I hear the slightest sound or if I notice someone walk into a room. And, I'm talking about someone that I live with, in my own home, just casually walking from one room to another, just minding their own business. I gasp, clutch my chest, as if I am having a Heart Attack, and shake nervously. It's a horrible feeling, to have on a regular basis!
These are just a few of the things that are going on with me. Every system in my body is malfunctioning. In fact, all of my organs are swollen. I don't know why this is, but I would owe my life to the person who ever figures it out. My best guess is that something is causing the Vasospasm, and I believe that the Vasospasm is responsible for all of the symptoms that I've been having. And, whatever this illness is, I agree with my Doctor, in that, I've had this illness, all of my life. Several of my Doctors believe that I have some type of non-transmittable Auto-Immune Disease, but none of them know which one. They all agree that there is no cure and no treatment, however. I have to disagree; I believe that it's something simple that is causing the Vasospasm, like some type of Disease involving the blood vessels.
For those, who are interested in reading about ALL of my symptoms and diagnosed illnesses & disorders (as well as photos, lab results and test results), please feel free to visit my web page, at nodiagnosis.weebly.com .
I look forward to reading your responses. Have a great day. :-)
Joe