How many of you have a fear of MS?

[Nattyburt]

Hell yes, i look up the symptoms and tell myself i have all of them so i must have it, right? apparently not.....

[nomorepanic]

Never worried about it at all

[Tinker28]

I used to never worry about it either. but since there is sooo much on TV, and in malls and such about this diesese, I have been worrying about it.

[eleanor_rigby]

I had never even heard of it until i got opticneuritis when i had just turned 18 years old. I had an mri scan which didn't reveal anything soon after, and 3 years on i haven't had a problem since. they discharged me and told me the cause was unknown. i feel like im kinda waiting for some sort of crash in the next few years where i will be told i do actually have ms.

[crazyhayz]

alix what are the symptoms of optic neuritis? its just that i had an appt with my optician coz i had foggy vision. vision was 20/20 but she spotted that i had slightly swollen optic nerves. She sent me for an appt that day at my local hospital, and i was checked by an Eye Casualty Specialist. He said he couldnt find anything wrong atall. So i was discharged. My foggy vision was put down to anxiety. I accepted that and it soon went away.. But the thing is, i keep thinking "But surely i mustve had SOMETHING going on in my eyes for the optician to say they were swollen and send me for an immediate appt?" Ive had a CT scan due to dizziness and all was clear. But im CONVINCED i have MS, i have sooooo many of the symptoms, and i know the only way to spot MS is through an MRI......... But ive also heard on here that it can be picked up on blood tests??? But dr.google says otherwise........

[eleanor_rigby]

I'm not entirely sure if people's experiences of optic neuritis vary or not but for me the symptoms were very obvious and not like what you described. For a few days I had a horrible headache above the eye, then I think it was pretty much BAM, blind in that eye and sooooo damn painful with eye movement. When I wanted to look to the side I had to hold my hand over my eye and turn my head really slowly so that my eye did not move with my head. I went to the hospital and they diagnosed me there and then with optic neuritis. Before this happened I originally went to my optician who couldn't tell anything was wrong and assumed my headaches were stress eurgh. but the hospital was reliable and I would trust them if they told you nothing is wrong. My vision came back slowly over the course of a couple of months and the pain went after a week. That week was the most horrendus thing ever though. I had to wear an eyepatch which helped, and i was way more concerned about the pain than I was about the fact that i was blind. If this is most people's experiences with optic neuritis then i can safely say you would KNOW if you had it. No two ways about it. The hospital would know as well.

Yeah to be tested for ms i believe you need an mri scan and im not even sure they are 100% reliable. if they show signs of it, there are further tests that can be done to confirm it. havent heard anything about blood tests looking at it.

[icysmoooth]

I've been through testing for MS - two MRI's and a third one will be done next year to see what is going on. I've also had a neurological exam and evoked potentials. So for now I don't worry about it, I eat following an MS diet and exercise. I don't experience any problems and have no trouble being a mom to my almost 4 year old son and doing everything I've always done. I think positive about it and have been give hope that I may not have it but I will deal with it if I do have it

[zippy]

my sister in law was diagnosed with m.s about 12 yrs ago and she works full time and is ok most of the time infact she is fitter than me lol.

[jaynee]

I am convinced I have MS or MND or brain tumour etc. i'm going totally mad with anxiety and dont know what way to turn. I'm glued to the internet scanning symptoms. My GP has referred me to mental health and in the meantime I am expected to relax!!! I will need sectioning by the time I get seen :(
Does anyone on here feel ill all the time, I mean never well but everyone is saying there is nothing wrong, I told my GP I thought I had ms and he just tried to silence me! Jayne

[crazyhayz]

Jaynee, thank god i posted, i like you feel ill with anxiety all the time, like constantly. Im having CBT though plus meds, so am on the up, but im never relaxed. im constantly tense and feel like im losing it. I am utterley convinced i have MS like you too... hope we can find peace together lol! x