Originally Posted by
Mommyof2boys
I wish you well in this rabbit hole experience. I have had an emg and the twitching (I STILL twitch, 2 years later but no weakness!). When I started going to doctors about this I had a vitamin d deficiency too! I think that's a mom thing, we stay inside a lot more than our childless counterparts. I also believe having a small child exacerbates the fears and symptoms of these diseases. My number one concern was not being able to see my babies grow up. That and worrying about who would raise them when I was gone. It's hard to be logical or calm when there is so much depending on you. That fine thread of parental sanity is easily compromised especially if our bodies are giving us signs of impending doom. I still have a little fear but months and months of no progression and the normal EMG has me at a different place in the rabbit hole. Basically I'm right at the edge, always looking down and sometimes swaying into the darkness, but always able to see the light as well. I learned a while back that I would fare much better to live life worrying about my children and making as many memories as possible with them. I could be hit by a bus tomorrow. Or have a stroke right now. No matter what, the moments i have in life are precious. These words never affected me when I was deep in that fear. I just wanted to know symptoms, read patients stories, and wait for the weakness. I hope you can reach the light soon. And I promise that your EMG will be normal, just as mine was.