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Thread: 99.9% sure I have a carcinoid tumor

  1. #11
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    Aug 2015
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    Re: 99.9% sure I have a carcinoid tumor

    Quote Originally Posted by Hypo27 View Post
    The endo did say it would be pretty rare for me to have it but wanted to make sure it wasn’t.
    OK. So while I totally get this isn't a good situation for a health anxious person to be in (I've been there), this isn't someone saying they are "99.9% sure you have a carcinoid tumor", it's saying it's a very long shot but they want to rule it out just in case.

    While I get this is stressful, do you see how it's totally wrong for your anxiety to turn that into being certain the end is nigh?

    I do appreciate first-hand how difficult this kind of thing is for people with HA, and I feel for you, hang in there. But try not to let your anxiety spin this into something it's not. At this stage it's dotting Is an crossing Ts on an outside chance, based on what sound like very vague symptoms. It's still vastly more likely to be something else, and with those vague symptoms probably even something and nothing.

  2. #12
    Join Date
    Jun 2014
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    16,739

    Re: 99.9% sure I have a carcinoid tumor

    It needs to be a urine collection over 24 hours and there is a dietary exclusion list as well.

    ---------- Post added at 17:42 ---------- Previous post was at 17:39 ----------

    I've recently been tested for carcinoid and I have a friend who has it. Your symptoms are nothing like hers if that's any comfort. As axolotl says, carcinoid is just being ruled out and your endo obviously wants to run tests for everything which is scary for someone with HA.

  3. #13
    Join Date
    Jan 2017
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    995

    Re: 99.9% sure I have a carcinoid tumor

    I’m pretty sure this late stage cancer of some kind... The past few days I’ve been feeling bloated more than usual and after I eat it feels like food don’t digest... I cannot burp what so ever food will come right up :(.

    ---------- Post added at 15:18 ---------- Previous post was at 15:10 ----------

    Early satiety is the medical term for it I get so full and bloated only eating a small amount and what worries me the most is it just start a few days ago.. Could this mean it’s advanced??

  4. #14
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    Mar 2018
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    Re: 99.9% sure I have a carcinoid tumor

    Quote Originally Posted by Hypo27 View Post
    I’m pretty sure this late stage cancer of some kind...

    You’ve been pretty sure to 99.9% sure you’ve had cancer for years now.....

  5. #15
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    Jan 2017
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    995

    Re: 99.9% sure I have a carcinoid tumor

    Quote Originally Posted by AMomentofClarity View Post
    You’ve been pretty sure to 99.9% sure you’ve had cancer for years now.....
    Why else would I all of a sudden have these severe symptoms? Getting full after small amount of food nausea vomiting undigested food...

  6. #16
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    Mar 2018
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    845

    Re: 99.9% sure I have a carcinoid tumor

    Quote Originally Posted by Hypo27 View Post
    Why else would I all of a sudden have these severe symptoms? Getting full after small amount of food nausea vomiting undigested food...
    Why did you have whatever symptoms you had 3 years ago when you were sure it was cancer? To quote Forrest Gump...shit happens.

  7. #17
    Join Date
    Jan 2017
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    995

    Re: 99.9% sure I have a carcinoid tumor

    These symptoms plus debilitating fatigue can’t be anything good..

  8. #18
    Join Date
    Aug 2013
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    24,677

    Re: 99.9% sure I have a carcinoid tumor

    Quote Originally Posted by Hypo27 View Post
    These symptoms plus debilitating fatigue can’t be anything good..
    When you get your diagnosis, let me know. I know of a great forum that offers support to cancer patients. It really helped me in my battle with the beast.

    Positive thoughts
    __________________
    "Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon

    The best help is the help you give yourself! http://cbt4panic.org/

  9. #19
    Join Date
    Mar 2018
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    845

    Re: 99.9% sure I have a carcinoid tumor

    Quote Originally Posted by Hypo27 View Post
    These symptoms plus debilitating fatigue can’t be anything good..
    Please...a year from now, you’ll be alive and well, posting to this same forum with another list of symptoms, and how you’re sure it’s cancer this time. It’s the same pattern you’ve been following for years and will obviously continue to do so.

  10. #20
    Join Date
    Dec 2016
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    3,832

    Re: 99.9% sure I have a carcinoid tumor

    My internet doctor’s degree opinion differs with that diagnosis.

    I’m 99.9999999999999999% sure this is late stage health anxiety.
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