Anyone any idea how to get over als dragon ?

[Murphy93]

Hi Ajack sorry for the late reply on this one

Thank you for the kind words it’s nice to know I’m not alone it’s such a horrible experience to go through today has been two months exactly - just trying to take it one day at a time at the moment and hopefully snap out of this

[Murphy93]

Hi all

That’s me 2 months down the line still battling with these internal tremors ?

Is anyone still feeling the same ? The tend to get worse at night when I’m trying to sleep

Can they last this long with anxiety !

Just wondering if someone has any positive news that they do eventually subside

[Murphy93]

Hey everyone

i thought I was finally over coming this ALS fear but tonight it’s back with a vengeance.

Now over 2 months now and I am still twitching all over - internal tremors are still there but now I feel stiff all over and my arms are particularly weak and achy

I’m so mad at myself because to be honest up until this year I had never ever thought about this disease

im lying awake terrified - any way just seeing if anyone was up who could offer me some wise words and support

thank you

[Fishmanpa]

READ THIS as often as you need to. ALS is about failing, not feeling.

Positive thoughts

[breeze25]

I’m on my 5th week of them now�� driving me nuts. It has sent my anxiety through the roof.

I notice more when resting or trying to sleep. I’m off work this week and I’ve has too much time on my hands and anxiety is at the worst it’s been on years. I’ve got some pills from the doctor, so hopefully they will help me.

hope yours have improved or gone.

[Murphy93]

Thanks fish manpa ! That’s helped me

im still having another sleepless night with the achy weakness in my arm oh the joys of anxiety.

[breeze25]

Murphy93

Ive also replied to another one of your threads.

Like you, I’m experiencing those awful internal tremors, I’m in my 5th week. I’m also experiencing weakness and aching In my legs. (Of course I’m putting it down to something serious rather than the 10 mile walking (including steep hills), I’ve been doing)

funnily enough I also have a vitamin D deficiency and was put on a 7 week course of pills. My doctor said it was possible that the vitamin D deficiency was causing the tremors. I’ve noticed that the day I take the pills my shaking appears worse, so I’m hoping when my vitamin D level stabilises, my tremors leave. (That’s my thoughts on a good day)

[Murphy93]

Hi all , I’m having such a difficult time at the moment I feel like crying

For the past 2 months I have been having muscle twitching and all over body vibrations

Now my legs feel like jelly and both my arms are aching and weak

I honestly feel sick that I have that disease

I’m 28 years old and literally living in misery

Can anyone offer me any advise

[nomorepanic]

We have loads of posts about this so take some time to read the similar thread which is down the bottom of the page.

Have you read the sticky thread on this as well?

So far we have hundreds of posts and not one person has been diagnosed with ALS.

[Murphy93]

Thank you Nicola - currently trying to calm myself think I had a bit of a panic attack . Yes I’ve been reading the sticky over and over for a while