Hello everyone. This is my first time in here. I'm very scared.
Everything started in October 2015 with a twitching thumb on the left hand. At the time I was scared and I tought I had a brain cancer. Neuro said no.
Then I searched on Google: Thumb twitching... And I found about ALS, next thing I know, twitching everywhere! Then I had some stifness in my hands and my handwriting was a mess. I did go to see a Neuro again and he said that I'm completly fine.
2018: Still having fasciculations but they are only in my legs and sometimes at some random body parts.
March 2018: Diagnosed with Mitral Valve Proplase! I don't have any regurgitation.
Then I was focused on my heart and I was kinda depressed and sad. Then again I went to see a Cardiologist and he said I can do whatever I want, no limits, my heart is healthy.
I was happy and decided to go to see my sister in Italy. I was in Italy for one month and it was FUN!
While I was in Italy, I woke up one day and realised that my twitching is GONE! I was so happy, it was just EPIC to finally be free from fasciculations and many more symptoms were gone!
So, everything was fine until I decided to write on ALS forum that I'm doing great, also wanted to say thanks to them, beacuse they were really nice to me. While I was on ALS forum, I was starting to ask myself: What if the twitching I had is really from ALS and even if I don't have them now I will get them and BOOM, next thing I know my back is twitching and then I started feeling twitching everywhere, fine twitching like some gentle touching under my skin, then my TONGUE started and also is twitching in a resting position. So scared and lost.
Tongue twitching is stopped now but still I feel some twitches here and there.
Also today I'm scared to death beacuse while was drinking coffe I felt litle burining up in my throat and I think I also did have some coffe/water come in my nose very little but still. So i drinked too much water today and i could drink it fine but twice happend that water while i was drinking gone trough my nose little. not really sure that happend but still. Oh, forgto to add, almost 3 weeks pleghm in my throat. Some days are better the others but some are not. And also, I have problems with my sinuses.
I'm seeing new Neuro this friday.
And I don't know if Im an anxiety person but let's just say i feel little pain i start thinking its a cancer. lol ... Im 24 years old
SORRY FOR MY ENGLIHS!