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Thread: Is it in my head? Can't be

  1. #1
    Join Date
    Apr 2016
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    82

    Is it in my head? Can't be

    Brief backstory, I'm writing this to keep myself sane more than anything...
    32yo female mum of two.
    Never had a health issue for the first 31 years of my life, but have always suffered general anxiety, with flare ups at times.
    Until 18 months ago, I had never worried about my own health. Well only if I was actually crook, but I was never anxious about it. Then it started. A few weeks of light headedness and fatigue had me take myself off to the GP. He did and MRI of my head to "rule everything out" but I got really stressed about it. Then when I rang to get the results the nurse told me the doc wanted to see me in person and booked me an appointment. I had my first full blown panic attack. I couldn't breath, I couldn't walk, I was like jelly. I was convinced that he was going to tell me I had a brain tumour or MS and my two babies would be motherless. Of course the MRI was relatively normal, just a minor thing that he wanted to flag with me...
    From then on I have had-
    Full body wide twitching, buzzing, tingling 24/7, convinced myself I had ALS. Visual problems, flickers, flashes, floaters, eye pressure, rings in vision, Halos, starbursts, after images.... all I have is subtle early cataracts apparently.
    Then migraines, more visual stuff....must have some rare neurological disease. I've had puffy eyes, pain in my foot with a lump that I convinced myself was cancer ( was plantar Fascitis, probably caused by my strength tests to make sure I don't have ALS)
    I had some spotting for a week before my period, rushed to the doc who ordered an ultrasound (normal) and a pap smear (normal) Pap smear found a rare bug, doc retested and said it was just contamination. I read all the symptoms of this infection (at time I had none) now over the last five months I've had them all... discharge, pain both constant. Docs find no bugs on any swabs except ureaplasma. More antibiotics, do nothing... now booked for surgery to investigate uterus and tubes/ovaries and clean out and test uterine lining. Still waiting for another neurologist appointment on 30th Jan for all the visual problems...

    Honestly, I can't get my head around all this, going from being fine to so many different issues and specialists and tests and... I'm not coping

    Thanks for listening.

  2. #2
    Join Date
    Jan 2017
    Posts
    68

    Re: Is it in my head? Can't be

    Everything you say is my own story. Strange feelings in limbs, scotoms in vision field, migrain and light head lead to MRI yesterday under the label 'emergency'. Came back almost clear with some abnormalities though. Now I feel twitchings in some muscles, episodes of pseudo numbness in limbs, etc. I'm refered to neurology for further exploration. If it's ASL so be it. I came to the conclusion that what has to happen will whatever the amounts of anxiety you can pit against it. But relax, the odds are considering your age (and mine too 40) that it's à psychosomatic episode with stress related symptoms.

  3. #3
    Join Date
    Mar 2016
    Posts
    493

    Re: Is it in my head? Can't be

    Your story is down to a T to mine besides the brain tumor scare mine was heart worries and I also was a week before my 32 birthday when it all happened. And I also never worried about stuff like I do now and never went to doctors. Mine started with heart worried then went to ms and ALS fears from the twitching and numbness. Then came colon cancer worry because my bowel movements changed so much. Even had every symptom of colon cancer and had colonscopy on deck 17 last year it came back fine. Now I'm back on MS or ALS. The twitching has went into overdrive. Even having some weird calf/ leg soreness in both legs. If I sit at my computer my legs twitch like crazy everytime.

    Idk anymore what is wrong with me or if it's just anxeity. I do know I have no health insurance and have spent over 5 grand out of my own pocket last year for stuff I thought was wrong with me. And it's taking a toll on my family and gf by me worrying about what's wrong with me. I try to keep it all to myself now and it's hard.

    My legs have been feeling weird past few days. I have started walking some and trying to work soreness out of them ( not even sure how I got sore). I also feel when im laying in bed like my legs are kinda moving. Like bed is moving from washing machine or dryer being on and close but ours is not on and way to far away to feel it in our bed. I don't notice any real weakness or anything just fatigue and the full body twitching that never stops. My twitches didn't not start happening till 2 weeks after I ended up in ER with panic attack and chest pains. I mean what is odd of it being MS or ALS being it didn't start till after I was in a major panic state. Worse I have ever been in on my life?

    If you need someone to talk to I'm here for real. We are going thru the exact same thing right now and are the same age.

  4. #4
    Join Date
    Apr 2016
    Posts
    82

    Re: Is it in my head? Can't be

    I'm fairly confident my twitching and sensations are BFS. They vary depending on my levels of stress.
    Thanks for all the replys.
    The biggest thing that plays on my mind is my mind! Could it be a coincidence that since I developed health anxiety I have had more health problems than my entire life combined, or do I have more health problems because of my health anxiety...
    Mummybee

  5. #5
    Join Date
    Mar 2016
    Posts
    493

    Re: Is it in my head? Can't be

    Your anxiety is making you think you have tons of health problems mine does the same thing. From blood clots to partial block arteries to ALS to MS. That's what I'm dealing with right now.

  6. #6
    Join Date
    Apr 2016
    Posts
    82

    Re: Is it in my head? Can't be

    I don't think I could imagine the female problems I'm having...
    Could it?

  7. #7
    Join Date
    Mar 2016
    Posts
    493

    Re: Is it in my head? Can't be

    Yeah idk about that. Sorry I got confused .

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