Re: How do you believe tests when you still have unexplained symptoms?
It's a hard one because while I don't think it's right to tell someone there is nothing wrong with them - when they do have physical symptoms, I do think that at a certain point/certain amount of tests (which you have definitely had and then some) it is fair for them to say whatever it is - isn't cancer. Yes it can be missed but 'regularly' is a bit of a misnomer, it certainly isn't missed regularly with that amount of tests under your belt. Plus as far as PanCan is concerned, 20 months with no treatment would leave you in a terrible state by now, if even here at all. So I think you can put that fear to bed at the very least.
My boyfriend has chronic health conditions and it is extremely infuriating for him being repeatedly told he's 'fine' when he isn't, although his situation is very different to yours. What we do understand however is that there does reach a point where they can't actually test for anything anymore and that isn't really their fault. They've done what they can and as far as their training tells them, if they show up fine, then so are you. For alot of specialists their job is only to prove you do or don't have what they are looking for, anything else is up to someone else. So if you still have symptoms, unless you have an extremely empathetic doctor or are paying privately, they kind of leave you hanging after that point.
To me your symptoms don't sound serious, especially with the tests as assurance. Is it possible that you were going through a particularly stressful period at the time and it is related to your anxiety? I understand the HA started after the symptoms, but your brain is tricky and it could be subliminal. Or any major lifestyle changes?
I can't speak in terms of the believing tests because I personally find that hard, but what I would say is yes misdiagnosis happens but once you get to upwards of 2-3+ tests I personally think it is safe to assume they are correct because the chance of them all missing it is virtually slim to none.
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