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Thread: My Experience With HA

  1. #1

    My Experience With HA

    Hello. I hope you won't mind a newbie boring you with his personal story. Some of you might be able to relate.

    Health anxiety probably began, for me, along with all other sorts of anxiety, back when I was a timid and fearful little boy. I was an acutely sensitive child - the kind that is wary of other children, doesn't like to ride rollercoasters at the theme park, and spends a lot of time alone - and I had a very powerful imagination that often used to explore vivid "worst case scenarios."

    The first time I remember it being health related was over BSE/CJD or "Mad Cow Disease" which was the big public panic when I was a kid. I must only have been 8 or 9 when I was trying to test my motor function and memory, full of a terrible kind of dread that one of those burgers I'd eaten in the last decade would be the one to reduce me to a pitiable, spasming wreck. That's the first time I can remember experiencing the distinctive, cyclical thought-patterns of HA that are now familiar to me - the feeling that the worst case scenario is, somehow, inevitable, that if you're able to visualise it happening so vividly, then it must be true, and that if you dismiss this or that symptom as "nothing", Fate - or some malevolent force like it - is waiting to punish you for your blasé attitude. You MUST worry, or else you'll be punished for your confidence, but the fact that you're worrying means you must sense the truth - you instinctively know your fate, no matter what any doctor says!

    So go the mad inner-workings of the paranoid mind.

    I had a reprieve from Health related anxiety through my teens - but it came back with a bang a couple of years ago, when I was 23. I was working in a job I detested, which involved sitting at a computer all day doing mind-numbing data entry - which meant I had eight hours a day in which to sit and notice every minute change in my body and to think about the implications of it. I'd been drinking a lot one weekend, and eating take away pizza, and I was self-conscious about the unhealthiness of that - subliminally I expected to be "punished" (that word again - is it just me who suspects there's a vindictive force governing my life? Is it a Catholic thing, or a HA thing?) for my recklessness, and as I travelled to work the next Monday I felt sure there was a tightness and a pain in the left side of my chest.

    "That's okay", I told myself, "At least there are no pins and needles" - but then, no sooner had I thought that than....actually, could I not feel some gentle tingling in the fingers of my left hand? I got into work and typed those symptoms into Google. I was quickly able to determine that I'd suffered a massive myocardial infarction and should phone an ambulance for myself immediately. After reading that, perhaps unsurprisingly, I started to go "pale, sweaty, faint and generally unwell" like the heart attack victim I so clearly was.

    Not being quite mad enough to believe that catastrophic diagnosis, I did, however, seriously start to suspect I had some latent heart condition that needed surgical treatment. Those five Domino's pizzas over the last two years had obviously built up sufficient cholesterol to totally clog my 23 year old arteries and a triple heart bypass was probably the order of the day - my imagination went to work, and I could feel the cold fear of lying on the hospital bed, in a surgical gown, being wheeled in to theatre - the frustrated face of an anaesthetist trying to find my elusive veins the last thing I would ever see.

    Here's where it gets really funny: I went to Tesco on my lunch break and bought Aspirin and dark chocolate because I heard they thinned the blood and reduced the risk of heart attack! Sadly, they didn't really do the trick and when I felt a fluttering in my chest later in the afternoon that was the final straw - I had to go to the walk in centre.

    The next three or four weeks were a kind of protracted saga of rolling health crises, during which time I had a hospital ECG, a 24 hour heart monitor and blood taken, while my symptoms "progressed" to regular palpitations, sore, tender ribs on the left side and then the right, very sensitive arm pits, aching glands in the neck and tremors in the left eye lid. Naturally, during this period I had a potentially fatal cardiac arrythmia, bone cancer, lymphoma and multiple sclerosis. In my opinion. In my doctor's opinion I had...anxiety.

    Since then I've bounced between intermittent mini-crises with gaps of a few healthy months. I read about Charley Boorman's testicular cancer recently, and sure enough, shortly after, I started to get a dull ache in my right testicle. The thing is...the ache really WAS there. I wasn't imagining it. But there was no lump, so I remained mildly concerned rather than panicked, and after an anxious fortnight it faded and went - probably some mild infection.

    Recently I read on a forum a post from a man who was diagnosed with lymphoma at 32, having had pain in his abdomen from an enlarged spleen. It got me reading up again and thinking about Lymphoma. The two Ls, Lymphoma and Leukaemia, must be my biggest fears. Something about the way they strike the young as well as the old, the way they can give such apparently trivial and vague symptoms, masquerading, almost, as a flu or a general tiredness until it's too late. I am genuinely terrified of such a diagnosis - of everything that being a cancer patient would entail, the feeling of loneliness and isolation from the carefree, "healthy" world outside, the dreaded chemotherapy, the constant knowledge that something is inside you, and progressing, the needles, the blood taken, the gloomy disinfected hospital corridors of looming death....the very word "lymphoma" nauseates me somehow, makes me sick with terror.

    And surely, for someone with Health Anxiety, cancer of any kind must be the worst torture of all - because from then on, once you've had that diagnosis, you live in the shadow of it forever, don't you? Even if you're in remission...every subtle change in the body, every tiny pain or lumpy feature and you're thinking "It's back isn't it? It's back and it's moved to..."

    *shudder*

    Anyway, I've been on high Lymphoma Alert, if you like, for the past week since reading that guy's story on the forum. And this morning, while getting dressed, I checked my neck and felt two pea-sized swellings half way between the ear and the shoulder. I was in my GP's office by 9am. He confirmed it was my lymph nodes I could feel () but said there didn't appear to be any "swelling" that he would consider abdnormal, said it was quite normal to be able to feel nodes in the neck - and even showed me one of his own, quite visible as a little peanut shape under the skin behind his ear - but sent me for a blood test to "put my mind at ease."

    As always, my thoughts have followed a familiar pattern: initially, I'm comforted by what the doctor says. Then, I start to ask myself, "What if he didn't check thoroughly enough? What if it's just the very early stages, so it seems almost indistinguishable from normal size? He's told me the blood test results will be back tomorrow, so does that show he secretly thinks it's an urgent problem?" - and so sneakily, through the back door, anxiety creeps and creeps back in.

    I'm less stressed than I was first thing this morning, but I don't dare be "calm" - because calm confidence, as I said, is what life will punish me for. Similarly, on a plane, if I'm not gripping the arm rests for dear life from landing to take off - if I have the temerity to loosen up and "enjoy" the flight - I'll anger the gods! So I await the results of my bloods with due trepidation. And even if they come back all clear, I imagine checking these nodes on my neck will be a regular compulsion for the next few weeks. They may well have been there, just like that, for years. My whole life perhaps. But I've noticed them now and that's it.

    I can see the funny side of my Health Anxiety - I can see how ridiculous many aspects of it are, especially in retrospect, when symptoms have come to nothing. But really, when you're in the midst of it, it's not funny. It's DRAINING. It plunges you into a strange parallel-dimension of dark, death-filled imaginings....where you start to look at other people and feel jealous of their carefree, unworried existence. Just the other day I was watching some burly builders swaggering down the street stuffing bacon butties in their mouths and I thought "I bet they've never had a crippling fear that they've got lymphoma....oh, to be like them."

    I marvel at people who somehow manage to just LIVE in this world, without analysing and fretting over every minute of it. People who find a swelling somewhere or have an unexplained pain and just say, "Ah, it'll sort itself out." People like that AMAZE me.

    But I don't think I can ever be like that. I think fundamental aspects of my personality like sensitivity, intuition, powerful imagination, acute self-awareness - all of which have plenty of good applications, making me a generally compassionate, understanding and gentle person - also lead to me being intensely fearful and powerfully aware of worst case scenarios. I soak up information like a sponge. When I hear about Delta Goodrem discoring a lump on her neck, I start to see myself in a story like that....my life becomes a story with an already-written tragic script, and words I say to other people become poignant, ironic words looking back from the vantage point of my funeral.

    That's why I'll never joke about cancer with friends. I have visions of being that person who joked about having cancer and then turned out to really have it, or that person who dismissed his symptoms as "just feeling run down" and ended up collapsing, having an enormous tumor discovered, and being given weeks to live.

    Incidentally, I should say that I blame some of my HA on my dad who's one of those people who ALWAYS has a story about some fella he knew whose nose bled for a few weeks, he turned out to have a brain tumor and was dead two weeks later, or a fella who went on holiday to Croatia, had a stroke and is now in a wheelchair at 52, etc., etc.

    Anyway, this has been a mammoth post, but I just wanted to share the bizarre, sometimes comical, but always traumatic, workings of a HA addled mind. I was lurking for a while and saw a lot of people talking about things I recognised, which was really comforting, so wanted to try and give the same effect.

    I'm off to go and make sure my lymph nodes haven't grown.

    Peace, love and good health.

  2. #2
    Join Date
    Apr 2010
    Posts
    1,661

    Re: My Experience With HA

    I love your post! Not becasue I love that you have to live with this, as wel all do here, but because I can relate so much to your story, and the way you tell it. I too deal with my HA by adopting a kind of fatalistic black humour, and other people genuinely believe that I find it funny, because I do see the irony of it and I do talk about it jokingly to other people, but the sad truth is that in the small hours when those thoughts are racing round your mind, you can't make light of it, and it really isn't funny at all. I also find that my symptoms don't always fit the classic 'anxiety' symotms. I delveop all sorts of real physical pains, and I 'know' they can't be anxiety because who ever heard of a pain in your right rib (or whatever this week's symotom is) being caused by anxiety. Pins and needles, palpitatons, stomach upsets yes, but not pain in random places. However I have learnt over the years that there really isn't a single sensation in the body that anxiety can't casue. This is what makes it sooooo frustrating, becasue every single one of those symptoms could so easily be something other than anxiety. I can also relate to what you say about the doctors. I am just the same. I leave the surgery feeling elated, like I have a clean bill of health, a fresh start, then within hours, the doubts creep in. He obvioulsy didn't examine me thoroughly enough, or the test he did was not sensitive enough, or he got my results mixed up with someone else, etc etc and so it goes on.

    Interesting that you make the Catholic link, I was bought up a Catholic too and wonder if this has anything to do with this doom and gloom thinking? Every time I get a new syptom, I think 'I have been lucky so far and everything has always turend out to be my anxiety, so by the law of averages, one of these days it has to be something really serious'. I play out worst case scenarios in my mind a lot and somehow seem unable to avoid torturing myself with them.

    Anyhow, it helps to find somewhere like this where there are others who can relate. I think anxiety of this sort can so easily be taken as some kind of social joke, but when it's your life that's being taken over by it, it is no joke at all.

  3. #3
    Join Date
    May 2009
    Posts
    83

    Re: My Experience With HA

    O.K. this is really scary but two seconds in to your post the thought came to my mind, "he must be a Catholic". Takes one to know one. I can remember being a small child and laying in bed for hours worried about God punishing me for whatever Sister said I did wrong that day.

    I'm so glad you took the time to write your experience, because so much of it rings so true for me as well. You tell a good story - maybe you can journal your experience as a way to get rid of it?

  4. #4
    Join Date
    Dec 2009
    Posts
    146

    Re: My Experience With HA

    your post has so squarely hit the nail on the head that I have saved
    it. You have worded HA so well and your story really is mine also. Especially the heart part. Welcome to the site mate

    jim
    __________________
    What if the Hokey Cokey actually is what it's all about?

  5. #5
    Join Date
    Feb 2008
    Posts
    226

    Re: My Experience With HA

    Hi,

    Well I wanted to let you know that I read all the way through your post and can really relate to you and all of it.

    Firstly though I must say you are such an articulate, well spoken young man and come across as so sincere and genuine.

    I never worried about my health until almost 8 years ago, when the palpitations started and I honestly thought I was dying, because in my mind there was no way that my heart could feel that weird and that there couldn't be something wrong with it. So after a 4 hour doc visit after 4 1/2 months of suffering, they went away. Strange that! Anyway it left me always wondering, feeling, poking, assuming that something was wrong. But through it all I kept going, dealing with those completely uneasy feelings alone and in my head, and albeit very difficult some days, I just had to get up, go to work and deal with it.

    These days I have some minor things that I worry about but generally I am not all consumed by this. I know that worrying does not change the outcome so am trying to convince myself to stop the perpetual worrying and live life while I have it.

    Anyway just wanted to say hello and tell you my side of things. The biggest thing for me is I never want to reach a ripe ole age and look back and say "if only" so that is why I keep going like the energizer bunny no matter what.

    Hang in there and let us know how you are getting on.

    Take care
    Natalie x

  6. #6
    Join Date
    Sep 2008
    Posts
    237

    Re: My Experience With HA

    Thank you so much for your post, it was brilliant and described health anxiety so well. I also loved the touches of humour you brought to a condition which can, for the most part, be so unfunny. You clearly have excellent writing/communication skills, I hope you continue to make the most of them.

  7. #7

    Re: My Experience With HA

    Thank you for writing that ,it could have been me !All the feelings and thought processes are sooo familiar! Of course it's funny when the rational mind is working but when the worry wort is working it's anything but!
    I try not to read the newspaper as there is always some story about a cancer victim and once i start reading feel compelled to read the full article and then normally end up having a bad day.
    Oh to be care free and not always think the worst!

  8. #8
    Join Date
    Oct 2007
    Posts
    3,735

    Re: My Experience With HA

    Please could you keep a diary and write a book for us all as you describe everything so perfectly - everything you said I have thought especially the bit about daren't not worry and I am not a catholic but still affected exactly the same - maybe we all have the same punishment problem

    Serously it would be wonderful for us all ifyou could keep us regularly posted about your HA as you are so easy to relate to and funny with it

    Welcome

  9. #9
    Join Date
    Sep 2007
    Posts
    304

    Re: My Experience With HA

    totally agree..fantastic post.. health anx put perfectly, i had just said to my sis that i want to be normal!!!! no one knows how HA feels less you have it xxx

  10. #10
    Join Date
    Mar 2010
    Posts
    542

    Re: My Experience With HA

    Brilliant post, encapsulates exactly how it feels to have HA. Everything you say describes exactly how i have felt on and off for the last 19 years. Oh to be normal and enjoy life.

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