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  1. #11
    Join Date
    Mar 2016
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    Re: Help - Deep ALS rabbit hole

    Quote Originally Posted by Villa07 View Post
    Thanks for replies. Still twitching, still in the ALS hole, still googling 8 hours a day, still looking for reassurance. HA is f**cking horrendous.
    It is, but what do you expect when you're choosing to Google? Nobody is forcing you to do this, it's a choice and an incredibly poor one.

    Any comfort you gain from seeking reassurance will be obliterated the moment you Google and allow your thoughts to catastrophise..

    Also, I don't think you actually understand ALS. There's weakness as in tired muscles (like when you've been carrying heavy shopping bags and put them down) and there is can't-hold-onto-a-cup or button your shirt weakness. When we're anxious we tense muscles and the fight or flight response is triggered and if we don't respond to the 'danger' the way we're designed to (run off or fight) then the consequence is muscle tension, shakiness - cramping..

    To explain this further..

    Fight or flight sends blood to the areas needed for action. Energy is diverted to where its needed, such as the muscles in your arms and legs because you need those to run away or fight the danger. If the energy isn't discharged then there will be muscle tension, shakiness - twitching. This is what's happening to you because you are constantly in fight or flight with no discharge of this energy (you're adding to it whenever you Google or think irrationally) and because you have HA you are misunderstanding this normal response for something that you fear but which doesn't actually fit with your symptoms..

    I'm always twitching, cramping and feel weak. (I don't have ALS)

    You do have a mental health disorder which needs addressing. You need to stop Googling and start working on your health anxiety.
    Last edited by NoraB; 16-06-22 at 06:43.
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