Originally Posted by
Ben1989
And what did the neuro say and do? It's important you detail your appointment
1) Bulbar is a sense of when you can't say a word, you can't say it again. ALS are permanent changes. So, I highly doubt this is attributed to bulbar and more to your anxiety towards it. Let me guess, you concentrate so much on your tongue now? I do too, as I too have a bulbar fear at the moment
2) Sticking your tongue out has many 'methods'. Ask a friend, gf/bf to do the same and compare. Typically, it will quiver. You say that it 'never' did. Nobody would know if it 'never did' unless you've been worrying for some time which I guess you have been?
3) Skin has nothing to do with ALS. If you mean mass, then the damage would have been done by this point and I suspect you would have noticed significant speech changes - which you haven't
4) Define this in more detail.