I agree , I think this is simple beq45......go to your GP. 'Not living like this' - well there is fortunately another solution rather than having a terminal disease
Open up and tell them how bad you feel and the level of your anxiety about health, take a list of bullet points if necessary; the effect it is having on your life, how low it is making you etc and request a mental health referral for support. I actually think you are further along in the process of dealing with this than you think , you have done a few fairly hard foundation things - 1. Accepted that it was/IS HA causing your fear of various symptoms. 2. Recognised that you want to not have HA as part of your life. (many never get to that point). You have actually moved on from the ALS and dealt with it actually, unfortunately, as is shown by so many here another illness takes its place with equal savagery. You have the ability to change things around and you are really SO young, with the rest of your life ahead of you. This can be kicked in the WHATSITS with the right techniques and efforts on your part. I think you would be able to do that too, put in the effort, as you have the motivation with wanting an end to this miserable state.